Leaving More Than My Heart In SF (& I Heart Zofran)

I’m keeping this short and sweet today, despite my overwhelming desire to shout from the rooftops all the wonderful things that happened at the Diabetes Mine Innovation Summit.

I left my life laptop at the SFO TSA checkpoint. I had a polite private pat down and was left to gather my things… But all I could think about was not throwing up, so I was not focused on making sure I had everything.

It was found. It is being shipped to me. I do back up all of my images and video and important docs so it would not have been disastrous, except for my wallet.

I got hit by a gastro bug that I’ve since learned has been making rounds across the country. John and The Kid had it while I was gone, so they can’t blame me.

My Dexcom graph looked like a series of mountain ranges at first, then just one big, yellow line for 24 hours, no matter how much insulin I pushed.

The saving grace was Zofran. That prescription was the only thing that got me home without a single incident of the Exorcist persuasion. I travel with a bottle due to gastric delay and the nausea it causes. Thank goodness. However, I hate being in one of my favorite cities, enjoying the company of friends I haven’t seen, while picking at what was to be a great meal.

So, Diabetes Mine Innovation Summit debrief will have to wait until I can type on my laptop and not my phone. Still not feeling great, but blood glucose is back in range.

DAM is still happening. Promise to get those out. Cross my… Stomach, which is still not feeling as good as my head is about all the good things I experienced at the Summit.

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DAM: Diabetes and Sick Day Rules

1209598_63761593I thought this might be a good post for today, seeing as our entire house is under a red level threat: snot alert. The Kid developed a runny, then stuffy nose and John and I knew we were next. We were not disappointed.

I have a tough time being sick. As a person with diabetes, I’ve been labeled “sick” while feeling perfectly healthy. When I begin to feel under the weather, I always have to ask myself: “Is this diabetes or is it something else?” If I am actually just sick, my diabetes takes an extra beating, so I have to be extra careful and follow the rules.

I’m talking Sick Day Rules. This is the plan that you use, developed by your medical team, to deal with your diabetes while you are dealing with illness.

A cold is not just a cold. A fever is not just a fever. A bout with a gastrointestinal bug is not… well, you get the gist. People with diabetes and their family members go into high gear, even when we feel like we can’t get out of bed, because diabetes doesn’t stop and rest.

What’s the big deal about being sick with diabetes?

As I’ve said before, our bodies are amazing machines, doing lots of things behind the scenes that we don’t consciously control. When we get sick, the fighting commences against whatever ails us, which often involves an increase of hormones making our blood sugars harder to control and rise with normal insulin doses.

If you don’t follow the sick day rules (and sometimes it should be called sick week rules), you can end up in the emergency room, dehydrated with high ketones and blood sugars. If you don’t have a sick day rules sheet, you should talk with your medical team about it and plan ahead. You can look at some great samples here:

U Mass Memorial’s Sick Day Rules for Type 1 Diabetes

Clinical Diabetes’ Sick Day Guidelines

University of Wisconsin-Madison Sick Day Guidelines for Patients with Type 1 Diabetes

I’m not eating. Why do I have to take insulin?

Your body is fighting, remember? The hormones are waging war against the invaders and your blood sugars rise with the hormones. Even if you are puking your guts up, you still need insulin. I know, it sounds crazy, but insulin must be taken, and sometimes, in larger quantities than when you feel fine and dandy.

(You didn’t think that your body would miraculously start making insulin because you’re sick? Nah. Didn’t think so.)

K-K-K-Ketones.

As if being sick didn’t suck enough, people with diabetes have to be super-vigilant about ketones. Your body, while amazing, also fails miserably when separating being sick from being “ketone sick” – it feels the same. Nausea? Shortness of breath? Vomiting? You can be sick – or have ketones – or both. So, the only way to know for sure is… check ketones by peeing on a stick (one that measures ketones, not one you found in your backyard) or by using a blood monitor that measures ketones and glucose levels.

If you’ve got ketones, follow your medical team’s guidelines. For me, depending on my ketone level, it’s more insulin and more liquids and more frequent testing. If it’s not coming down, I’m required to call for further instructions. I’m not failing if I have to call; I’m sick and I need help.

Help When You’re Sick With Diabetes

Some people have an emergency preparedness kit with water and matches and extra batteries. Do you have a sick day preparedness kit? If nothing else, have a list to give someone to pick up items at a pharmacy or grocery store if you don’t keep this stuff handy (but you should!). My list includes:

  • Sugar-free cough drops/throat soothers (I love Ricola.)
  • Sugar-free cough/cold medicine (ask for recommendations from your medical team)
  • Pedialyte – I know. Why Pedialyte? It’s got sugar in it. Yep. And electrolytes. If I’m puking, I’ll need both to absorb quickly. You can also get Pedialyte pops. If you have ketones, your body still needs carbs ingested to help clear out the ketones. I’ll talk ketones later this month. It’s fascinating.
  • Fever medication/Pain reliever
  • Tissues for your tender nose! (You can never have enough and when you run out? Ow!)
  • Prescription anti-emetics (If you can hold it down long enough to absorb it, you’ll thank yourself later. There are dissolving tablets of Zofran available. I adore these.)
  • Popsicles (sugar-free and regular)
  • Broth/clear soup/tea/soda
  • Bananas, toast, crackers and pudding
  • Glucagon, in case things go south fast (And while it may not happen, the whole point is to be prepared.)

You must check glucose levels and ketone levels more frequently. You must stay hydrated. You must keep carbohydrates in your system. And if you don’t normally write all the tests and dosages down (::raising my hand::), then start in case you need to call your medical team.

Calling Your Medical Team When You’re Sick with Diabetes

There are times when you must call your medical team. Fever doesn’t go down? Food doesn’t stay down? Blood sugars won’t stay down? Ketones refuse to come down? It’s a downer, but making a call can save your life. The medical team may give you extra advice or advise you to go to the ER. You may need reassurance and it’s perfectly OK to ask for that help.

The best thing that you can do for yourself is to have your sick day rules ready before you need to use them. At your next appointment with your medical team, get it in writing. Then share it with a friend or family member in case you’re too sick to get out of bed. 

You’ll save yourself a lot of hassle. It may not do anything to shorten the duration of the cold or fever or puke-a-palooza, but at least you’ll have your diabetes covered.

Fortunately, this cold is mild. I’ve raised my basal a little bit and no ketones, so I’m holding steady. I know that this won’t be the last time I fall prey to whatever bug is out there, but I’m going to play by the rules, even when my body doesn’t.

Remember: I am not a medical professional. Do not think that what I’m giving you is medical advice for even a second. I do not play a doctor on TV or on the Internet.