The Other Invisible Disease

“Get on a plane and just disappear.”

That was the first thought that popped into my head that morning, eighteen years ago.

Get in the car, get to the airport, purchase a ticket, and go.

Where?

It didn’t matter.

Do what when you got there?

Didn’t matter.

Nothing mattered.

From the outside, my life appeared fine and dandy. A successful career, family close by, disposable income, and a sweet loft apartment.

I was miserable.

Invisible

Much like diabetes, depression is invisible – and misunderstood.

Those who say: “Snap out of it. You’ll feel better tomorrow,” or “What’s to be depressed about?” may not be aware of the biopsychosocial model of depression.

The biopsychosocial model (abbreviated “BPS”) is a general model or approach positing that biologicalpsychological (which entails thoughts, emotions, and behaviors), and social (socio-economical, socio-environmental, and cultural) factors, all play a significant role in human functioning in the context of disease or illness.

Even if you look like you have it all together, if there is a biological maelstrom inside your body, you’re already behind the eight ball. A decrease in the amount of neurotransmitters that help the synapses in your brain (and keep those synapses firing on all cylinders) can be part the depression component. Studies have shown that individuals prone to depression have different brain structures or overactive portions of parts of the brain. No one can control brain structure or the amount of neurotransmitters coursing through our bodies. It’s pure biology.

There are other factors: how one deals with stress, what kind of stress the person lives with or is given, triggers for stress, how we perceive the world and even where we live. The biology of our body/brain plus the outside influences can send the average individual into a spiral. “Snapping out of it” just isn’t that simple.

Sinking

Very few people knew I was sinking. While I was isolating myself, I told everyone that I was swamped with work. (I worked from home, so it wasn’t like anyone could tell that I wasn’t.) In truth, work started piling up. I traveled often, but kept putting off trips. Phone calls weren’t returned to clients and if they really needed a response, it was via email so I wouldn’t have to talk. I didn’t want to talk to anyone.

New Year’s Eve was spent alone, after turning down a few invitations to go out and celebrate. Celebrate what? Another year of feeling miserable? It’s not like anything was going to change. Why bother? I ate leftovers and played video games online.

I felt hollowed out, like I was a pumpkin carved and discarded. Things that once brought joy brought nothing. No emotion. Apathy. I cried myself to sleep at night. I barely ate. Even when I was forced to go out, I was the snarly, sarcastic bitch in the group of people. (There’s always one, right?) I preferred just being alone, because no one could see how lackluster I had become. Misery doesn’t love company. Misery wanted to be left alone.

That morning, I got up and made coffee, sat on the windowsill, and sobbed. I wanted to run away and if I wanted to truly do so, I could. I could just disappear. But I didn’t have anywhere to run to. And I would still be miserable.

Dancing with Depression

1392779_35393316I made a phone call and within two hours, I was sitting in a psychiatrist’s office with a prescription in my hand and a diagnosis of “severe” depression. Over the next few months, that office became a refuge and a place to share my thoughts about my life and my future.

Diabetes was discussed in depth: the suffocation I felt when I thought about living with this disease for the rest of my life, the damage that I had done with diabulimia, how I felt that I could never settle down with someone because I didn’t want to burden him, and the day to day grind with a chronic illness. We talked about how diabetes and depression were often intertwined (for the reasons mentioned above). We talked about how I needed to find some peace with the war I was waging with my diabetes.

Cognitive behavioral therapy is often used to help those with depression in conjunction with medications. The first antidepressant that the psychiatrist prescribed caused night sweats, nightmares, and paranoia… so I was quickly switched to another popular one: Prozac. (It is found that those with eating disorders should shy away from Prozac, as it suppresses appetite. I’m no longer on it…)

I slowly stopped sinking and stopped looking for the nearest exit from a room to get away. I began talking to people and clients again and one day, I laughed, startling myself. I hadn’t laughed spontaneously in months. My life wasn’t better, but it was sucking less.

But the dance with depression wasn’t over. I made a very big mistake. I eventually felt so good and so even keel that I decided I didn’t need to take the antidepressants anymore.

I tapered off the medication that had kept me buoyant while I moved several states away. I sold most of my possessions and decided that I would start anew with a fresh attitude, accepting an offer to move into my parents’ home in Florida to soak up sunshine and continue my career. My parents were traveling all summer, so I had the house to myself.

Perfect. New job, new acquaintances, new life… same old me.

Deeper Than Before

Unlike last time, I was interacting with people and going out. I was gregarious and downright charming. I was dating and making friends.

And then I just collapsed internally.

On a sweltering day in late August, I stood in a fashionable business suit in the middle of downtown and called my father on his cell phone.

“Help.”

That was pretty much all I could get out before I began to quietly sob. The conversation was quick and my father made me promise that my next call would be to a psychiatrist for an emergency session.

He flew home from his vacation the next day. I only left the house to go to the doctor for a few weeks. I took a medical leave of absence from the new job I hated and never went back. After I began feeling emotionally better and the medication finally kicked in, the real work began.

It Never Ends

The real work is this: an understanding that some people have one or two depressive episodes in life, others never get clinically depressed, and others (like me) have dysthymia/ persistent depressive disorder which is the medical term for “chronic depression”.

It’s quite popular amongst those with a chronic health condition. (Thanks, Harvard, for giving me this great quote and link to the research.)

At least three-quarters of patients with dysthymia also have a chronic physical illness or another psychiatric disorder such as one of the anxiety disorders, drug addiction, or alcoholism.

1441982_78749740For people like me, understanding that I am more susceptible to depression due to a chronic illness – or biology  – neither of which I can run away from, actually helps. Spending time with therapists who understand the weight of living with a chronic illness and working through cognitive behavioral therapy (CBT) techniques has made a difference. A book I recommend, if you’re interested in CBT is The Feeling Good Handbook. It’s pretty amazing and the workbook aspect of it really helps to make the exercises customized just for you.

And antidepressants? Yes. Please. After a few misses, I have found a drug combination that works wonderfully. Just like I take insulin daily for diabetes, which is a chronic illness, I take antidepressants daily for the other chronic illness. I’ll take them both daily for the rest of my life.

Just like diabetes, I have my sucky days, even with medication. They don’t last long and they’re not soul crushing like before. I talk about what makes me frustrated or depressed with those close to me and it helps. If I feel like I need to seek professional help, I go. It’s hard to take the first step, but it’s worth it.

Invisible

I’ve had times in my life that I didn’t want to share my diabetes diagnosis. I look fine, so why bring it up, right? Keep diabetes invisible and no one is the wiser. Except that doesn’t work.

No one seems to want to talk about a depression diagnosis, as if talking about it makes you seem weaker. Keep depression invisible and no one will think you are weak. That doesn’t work either.

We don’t talk about depression mixed with diabetes enough. The community is only now beginning to understand that living day-to-day feeling frustrated and sad and angry and despondent is part of diabetes that contributes to depression. This month is Mental Health Month and people with diabetes have opened up about the fight to stay healthy – body and mind. There are some wonderful posts about “diapression”, which is the term that has been coined to connote diabetes and depression. I urge you to review the Diabetes Advocates page on depression and diabetes for these posts and resources.

It took me almost the entire month to get up the guts to think about how these two chronic illnesses have made an impact on my life. Thanks to Scott Strange of Strangely Diabetic for reminding me that we all need to talk about this.

If You Have Diabetes and Feel Depressed

Do you have the symptoms of depression, like the ones I mentioned above? If you do, breathe, then pick up the phone and call someone who you trust. Tell them about how you feel.

It’s OK to ask for help. You will be OK. There are ways to treat this and you just need to take the first step. (Let me know if you can’t tell anyone. Send me a message at the perfectd [at] gmail.com and I’ll get you to the resources. You should never, ever feel alone.)

* After posting this, a few comments made me realize that I never clarified that the major depressive episodes I’ve had were almost twenty years ago. They make them no less relevant for me – or you – today.

But for those who expressed their worries… I’m good now and have been for quite a while. Antidepressants and good therapists keep me sane. So does the DOC.

And the bitchy moments I have? Can’t blame that on anything but my personality these days. Turns out you can be happy AND bitchy. You say bitchy like it’s a bad thing. 🙂 

 

 

 

 

0 comments
  1. Hugs to you. We are always here, so feel free to pick up the phone and call me anytime as well 🙂 I’ve definitely had some bouts with depression in the past, the worst when I was single and alone and felt so disconnected from the world and the life I wanted to have. Now, it’s still there – it can rear it’s ugly head at a moment’s notice – but I thankfully now have a husband and daughter who are able to snap me out of it before the sinking begins. It’s invisible, and tough, and icky, no question. Thank you for sharing, and helping others realize – we are not alone.

  2. I’m sorry to read this. I have bipolar disorder, so I can definitely relate. I was treated for depression for 10 years before the bipolar diagnosis came to light during a stay at the psych hospital 5 years ago. I wish you well on your journey and hope that you are in a stable place and getting the help that you need. While I am not the PWD in my family, it hit me like a ton of bricks when my daughter was diagnosed last year. But, I managed through because she needed me. I can’t say that I would have done as well if I was instead tasked for caring for myself through the diagnosis.

  3. Powerful stuff. You do more good than you know.

  4. I love you. Thank you so much for sharing & helping so many dealing with depression in the process.
    Xoxo

  5. As always, a well-researched post with a huge amount of baring your soul. Powerful writing along with a powerful message. Take care and virtual hugs.

  6. I support you, no matter where your life leads or how you’re feeling about it. Thanks for being brave enough to write such a thoughtful post.

  7. This had me totally in tears, not only to hear what you’ve experienced but in how so much of it is so very much mirrors what I have and sometimes still do go through. As others have said, I am here for you and support you no matter what. And know that my world’s better for having you in it, sharing your stories and being a friend and advocate. Thanks for sharing this, and everything you do. And I am so glad you didn’t get on that plane.

  8. Great post. I always say that people w diabetes have many chances to think negative thoughts about themselves all day, every day. Which is why CBT is such a good fit. We need to learn to balance our thoughts. I too like the Feeling Good handbook and also “mind over mood” by Christine Padesky and Dennis Greenberger.

  9. Brilliant description in telling us what it’s like, though I must admit that I don’t understand fully, and likely never will understand it unless I go through it myself. That much I do understand.

    With that said, what should I do if someone I love is struggling with depression? I don’t mean in general, I mean things are really tough at that very moment. Trivializing the situation with words like “it gets better” or “cheer up” are obviously cop-outs, and understanding the complexities of diabetes doesn’t mean understanding how or why they make a person feel the way they do – since everyone is different. I hear about this often, and never know how to react.

    In other words, how can I help?

  10. Once again brilliant writing. Heartfelt & spot on. I’ve spent many years and so much energy trying to fit in and draw little attention to the T1, that not allowing myself to reach out for any other help was second nature. Suck it up; deal with it. The very real chemical aspects of depression were never considered b/c of the social issues and conflicts always drew attention making it hard to identify just what was driving the depression-mobile. For a while I thought it was the “Bi-Polar Express”, but no. Once I heard the right questions that led to medicating the depression along with meds for a renewed diagnosis of ADHD, managing T1 d and balancing life became doable.
    I have sat in the airport parking lot with only my drug bag on the seat, contemplating where to go. I’ve made enough regrettable decisions due to the three bears I drag along with me and whatever allowed me to NOT reach out for help sooner. Now that I have taken those steps I can keep a lookout for those that aren’t reaching. Letting others know that I/we understand what a combo of T1d and any other disease or condition, especially the invisible ones, can do to us and our loved ones. And that we have and use resources, and that yes, making the first call is the hardest step.
    Thank you Christel for presenting real pictures of life as we know it and offering links for those that may be in need. Well done.
    bh

  11. Brilliantly brave and powerful post, Christel. Thank you for opening up your story for so many others to benefit from.

    I’m with you in the “on them forever” antidepressant club.

  12. […] I’ve never kept my bouts of depression a secret. It is liberating to talk about the things that scare you, as long as you know you feel safe. I have had some incredible medical professionals who have led me out of the dark places. I have some wonderful fellow T1 talkers who shine the light on the strong connection between T1 and depression. We can’t do this alone. It’s exhausting. And terrifying. […]

  13. […] life with diabetes. I’ve talked about how diabetes secrets can be harmful to my health, how not sharing certain secrets can be harmful to my relationships, but there are secrets that are kept just for me because I need them to stay that […]

  14. thanks for sharing you very powerful story!

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