It’s been a year, yo. A whole year.
On March 6, 2013, this blog roared into existence after an announcement of a potential cure for diabetes turned out to be a ploy for donations. (You might see it differently, but that’s what it looked like to me.)
I still have diabetes.
Want to know what happened after the trumpeted announcement? The Diabetes Research Institute has raised $4 million dollars. That’s what the last press release told the world. The BioHub is still vaporware, an idea that, while beautiful in design, is far away from being a reality.
What the BioHub has done for me has been anything but vaporware. It’s given me a perspective that I didn’t have before March 6, 2013. And a renewed sense of purpose.
We all want a cure, but what flavor… Vaccine? Transplantation? Artificial Pancreas? Some individuals and associations focus their funding, voices, and time for the “There must be a cure as soon as possible!!” and damn everything else. There are others (I’m raising my hand…) that focus upon living well with the disease. It’s not that we wouldn’t welcome a “cure”, but we also recognize that it’s still a long way off, so until then, the tech and the drugs and the support that keep us alive need to be as accurate and advanced as possible.
I see that sometimes these two views are at odds with each other. The parents of newly diagnosed children tend to be of the first camp and that’s perfectly fine. As I’ve mentioned before, the “cure in five years” has rung hollow six times over for me. It’s painful for me to watch the light slowly dim in their eyes as they come to realize that it’s just not that simple. Those like me who want to live well welcome them with open, comforting arms when they do step over. There’s plenty of room. And don’t think I don’t appreciate those who stick to the “CURE!” camp. I need them to keep rallying.
We all live with hope in our hearts. A cure for what ails us. No more external insulin. No fear of going to sleep and not waking up (or waking up with a gaggle of paramedics around you…). No kidney disease, retinopathy, heart disease, aches and pains and decision fatigue.
But in the meantime, I’m happy to be ThePerfectD, surrounded by the incredible Diabetes Online Community and the researchers and organizations who walk with me everyday. I’ve written approximately 166 blog posts (some were images, so I can’t say “write” for all of them…), attended conferences and summits, worked with other advocates to change the way the federal government looks at us, made amazing new friends, and have embarked on a few projects that will hopefully (crossing my fingers, toes, and any other body parts that I can cross) be an asset to the diabetes community at large.
Thank you for sticking with me for the past year. I’m a better person because of you. You inspiration. Your support. Your voice.
Thank you for letting me be ThePerfectD, especially when I am anything but perfect.