For those who have diabetes, it’s frustrating that the outward physical manifestations of hypoglycemia or hyperglycemia do not effectively translate the emotional turmoil inside. While we don’t want to live in fear of the disease and often fight to keep within a normal range, there are days when no one around you “gets it”.
The same can be said for those who care for (or about) people with diabetes. Parents and spouses must stand on the sidelines, cheering when things are good, coaching when times get rough, and stepping in to assist when needed. For them, it’s just as difficult because no one around them “gets it”.
I am thankful that we live in the Information Age, when we can not only get the latest research and news about diabetes, but also diabetes emotional support with a few keystrokes from those who “get it”. If you are unfamiliar with these diabetes community online support sites and are looking for an ear, a shoulder, or a hand to hold, you’ll find them here. (You won’t find a pancreas. Apologies if you were looking for one.)
Online community support is different than individual diabetes blogs or news sites, which I’ll cover at a later time. If you think I’ve missed one, please leave them in the comments section to be added. These are my favorites…
- Tudiabetes.org – Over 30,000 participants share their thoughts, questions, fears, and hopes. If it’s diabetes related, you’ll find it here. (As part of the Diabetes Hands Foundation, they’re also in the midst of The Big Blue Test, so it’s a great way to get involved.)
- Dlife.com – There is a support forum component to the Dlife.com website that I find to be helpful for answers to questions.
- Childrenwithdiabetes.com – Hands down, this is the place to go for support if you are a parent of a child with diabetes. It’s a little light on the adult diabetes support, but so amazing for parents.
- Myglu.org – About 7,500 users of the T1 nature. They have some interesting insights.
- Juvenation.org – Another T1 only site with both parents and people with diabetes.
- #DSMA – Twitter, Wednesday nights at 9pm Eastern is the place to be to talk with other people with diabetes in their lives (T1, T2, and T3…)
These are the online diabetes community support sites that I believe are helpful for when you feel alone. Because lonely is not a good feeling to have with diabetes. I should know. I’ve been there.
I get it.