Dear Usher and The Diabetes Community…

Wikipedia, courtesy of ©Alphonse Photography
Wikipedia, courtesy of ©Alphonse Photography

Usher, a music celebrity and judge on The Voice, revealed yesterday that one of his sons had been diagnosed with Type 1 diabetes in the last year. The Diabetes Online Community was all a-twitter at the news and my news feeds on FB were clogged with “Hey, look at this interview!”

Dear Usher,

Diabetes sucks.

Everyone thinks they know what it’s all about, but unless you’re part of a family impacted by this disease, it’s a soundbite and an “Oh, I’m so sorry to hear that,” before moving on to the next news story. Thank you for sharing an intimate part of your life with the general public and talking about making sure your child eats healthy meals.

You will, I have absolutely no doubt, be contacted by more than one diabetes organization asking to be a spokesperson for the cause. A famous person is always good for a wave and a smile on the stage, and a famous person with a connection to diabetes? Booya. They will want to you rally around diabetes research and a cure and raising diabetes awareness.

How about you focus on raising your children instead?

There will be plenty of time to advocate (if you want) in the future, but you’re still in that “What the hell happened?” phase of the disease. In addition, you’re also dealing with a family that does not live together, so factor in an ex-wife who I’m sure is just as worried about her children as you are, and there will be arguments over his care.  Teach your child with diabetes to be strong and self-sufficient and your child without diabetes to be understanding and compassionate. (By the way, if you don’t think his brother isn’t impacted by this, think again.)

Diabetes isn’t going anywhere. It will still be here if you want to talk about it. Look, other famous people have taken different routes in advocating: Brett Michaels and Mary Tyler Moore are solid advocates (and even Robin Thicke has gotten into diabetes fundraising – his brother is T1). Paula Deen admitted she was Type 2 when she could make money off of it. Tom Hanks mentioned it once on late night television that he has Type 2, but hasn’t said a thing since. Hell, Halle Berry won’t even admit she has diabetes anymore.

So, for now, learn all you can about this disease. Send your ex-wife and kids to Friends for Life this summer. Do what you can to keep him safe and feeling loved and supported. Make sure he knows that he did nothing to get this disease. I’m sure that you’re already doing all of this, but make sure that you are supported, too. Parenting is hard enough, but parenting a child with diabetes is going to be a whole new ball of wax.

If you need the Diabetes Community, online or in person, we’re here. There are a lot of great people who would be willing to help, famous person or not. You’re a parent of a child with diabetes. You’re part of that club that no one wants to be in.

I wish you the best. You’ll need it.

Sincerely,

Christel

And for the rest of us…

Dear Diabetes Community,

Remember The Diagnosis? Those days and months following the game changer of your life? It was a rough and heady time, with so much to learn and understand. After 31 years, I’m still learning new things about this disease.

So, please… back off on Usher and a crusade to have him become the beacon of advocacy for diabetes. He was brave to mention it openly. Don’t expect him to rally the troops and become a mouthpiece for organizations. Let him decide for himself, on his own terms, if he wants to be a part of our community at all. (We can be a little pushy at times…)

Nothing has changed since yesterday, except eighty people got The Diagnosis. Today, eighty people will get it. Tomorrow and the day after… He, despite being a celebrity, is no different. He is a parent of a child with diabetes.

While you think he may be able to reach so many people to raise awareness and money for diabetes, it should be his decision… and his family’s decision to become the poster family and the center of attention. There are other famous families who are already doing a spectacular job of that. And there are also families who are not quite so famous who are already doing a spectacular job, too.

Diabetes isn’t going anywhere. Neither is the Diabetes Community. We’ll be here if and when he wants to join us.

Sincerely,

Christel

Fab Five Fridays: Word To Your Mother Edition

Let’s clear up any potential fallacies right off the bat: I never was a Vanilla Ice fan. At the time he was popular, I wasn’t even living in the United States. When Ice Ice Baby filtered up to Montréal, he had reached “let’s totally make fun of him” status with his shaved eyebrow and his white boy moves. (And the fact he sampled Queen and David Bowie’s masterpiece, Under Pressure, to this day makes me cringe.) Yet, I still find myself busting out two particular phrases from this song (this blog post’s title being one of them…), and so… Welcome to this week’s edition of Fab Five Fridays!

Mr. Ice may not be fab, but these mothers (And two dads, but there are no “word to your father” lyrics.) are the bomb. If you haven’t been introduced to these individuals yet, allow me the pleasure…

“Check out the hook while my DJ revolves it…” (I’m so sorry. So, so, so very sorry.)

1. Leighann Calentine of D-Mom.com – Prolific and filled to the rim with great information, Leighann recently wrote KiDS FiRST Diabetes Second: tips for parenting a child with type 1 diabetes. Her blog should be bookmarked for all PWDs, not just parents. She’s got a great page dedicated to the carb counts of snack foods and a great section for the newly diagnosed. Her daughter, Q, was diagnosed in 2008 at the age of three.

2. Lorraine Sisto of ThisIsCaleb.com. This woman is everywhere and I mean that in a good way. Lorraine is an advocate, co-hosting Diabetes ‘Rents at DSMA with another fab parent. She’s also an administrator over at TuDiabetes.org and an active member of Diabetes Advocates. She also has some crazy mad skills with her daughter’s hair, which makes me want to be adopted by her family just so I can have her do my ‘do. Her son, Caleb, was diagnosed in 2007.

3. Wendy Rose of CandyHeartsblog.com. Wendy’s daughter is not just Type 1… she’s also celiac, which means anyone who ever mentions celiac disease to me gets pointed straight over to Wendy. She’s the mom expert on this, as far as I’m concerned. Know what I love? She shared her daughter’s 504 plan online to help others. Hells, yes. I had the opportunity to meet her during a social media session at Friends for Life (and I use the word “meet” in the sense that we shared the same “careful what you name your blog” moment during the session.).

4. Mila Ferrer (and her husband, Jimmy) of Jaime, mi dulce guerrero rocks it for the Spanish speaking population. While I do speak other languages, Spanish is unfortunately not one of them. However, what I do know is that they have dedicated themselves to speaking up for the Type 1 community on a national level and give a beautiful voice to this disease. One of my regrets at Friends For Life was not having the opportunity to meet them. (And they have put “learn a fifth language” on my bucket list.)

5. And then comes Bennet Dunlap of Your Diabetes May Vary. I’ve mentioned him before, but I have a secret to share. Bennet was the first parent of a Type 1 that I met as an adult (my parents notwithstanding…) – and I was in my late 30s. (Yes, I babysat a Type 1 girl when I was in my teens, but we never sat down and talked about stuff…) He opened my eyes to the parent side of things and for that, I’m eternally grateful. The fact that he and I share the same type of sarcastic humor helps. His blog gives us insight on what’s going on in the FDA world of diabetes and he is tireless and relentless in the fight to stop the stupidity of diabetes management whenever he finds it. A co-host of Diabetes ‘Rents, member of the Diabetes Advocates, has a Masters in Health Communication, two phenomenal kids with Type 1, the catalyst behind Strip Safely, and one of the coolest peeps I know. I am honored to call him a friend and very glad that he is on our side.

Pick one. Or two. Or them all. See what they have to say. Share their blogs with others. I have only one other request for today…

Please don’t shave your eyebrow. Ever. 

Vanilla-Ice