Tagged: JDRF

Your 2015 Diabetes Conference Calendar!

543862_59738162

After not being able to find a single source for diabetes events and conferences that might be of interest for those who have diabetes and/or advocate for diabetes, I decided to create one in 2014 - and we’re continuing with a 2015 calendar for all diabetes conferences and events that you might be interested in attending.

Ta-da.

Please note that this is U.S.-centric, as I currently live in the United States. (Most of me. My pancreas is currently on the lam somewhere where it cannot be extradited.) However, I have added some international conferences. Most of these can be attended by the hoi polloi, but some do require a medical designation/degree (although a press pass may provide entry). These are regional or national shindigs, not local groups or walks. 

If there is one that I have missed, please notify me at theperfectd [at] gmail [dot] com so I can add it. I will be updating this calendar throughout the year so I suggest you bookmark this page now. (Go ahead. I’ll wait.) 

Click on the title of the conference/event for the website link/additional information.

January

Winter Slipstream 2015 (Connected in Motion) January 16 - 18, 2015 -  Camp Kandalore, Algonquin Highlands,  Ontario, Canada 

If you’re sporty and love The Great White North (to which the latter I can wholeheartedly attest), then go hang out with other Type 1s and do some cold weather athletic stuff. Connected In Motion is an amazing organization that will hopefully continue to do a lot of amazing work now that the U.S. based diabetes athletes organization, InsulinDependence, has closed its doors.

51st Annual Clinical Diabetes and Endocrinology Conference (National Jewish Health) January 23 - 27, 2015 - Snowmass, CO

February

ADA Research Summit Maryland 2015 February 7, 2021 - Towson, MD

The American Diabetes Association, Maryland Chapter is pleased to present a day of learning and interacting with world renowned scientists and clinicians focused on finding cures and better treatments for diabetes. This is free and open to the public, but only the first 220 registered can attend.

TYOCD (Taking Control of Your Diabetes) February 7, 2015 - Augusta, GA

TCOYD is a one-day program with tracks for both Type 1 and Type 2 individuals (and their friends and family, of course). Those who attend will have opportunities to learn about the latest tools, tips, techniques, and technology to help live healthier lives with diabetes. What I love about this program is that it was founded and is run by physicians who have intimate knowledge of diabetes; they have the disease! Many of the speakers also have Type 1 or Type 2 diabetes, so it’s not as if it’s a “do as I say and not as I do, because I don’t have a clue” program. If you have one coming to your area, you’re fortunate!

American Diabetes Association (ADA) Expo February 7, 2021 - Denver, CO

The American Diabetes Association Expo is a one-day exposition where one can peruse through exhibits and talk with professionals and those who are looking to promote items that may help people with diabetes manage the disease. There are health screens and demonstrations and is open and free for everyone. (If you know of anyone who may be at risk, bring them to one of these.)

EASD Diabetes Technology Meeting 2015 February 11-12, 2015 - Düsseldorf, Germany

This meeting, held not in the United States, will present “top level research” in all areas of diabetes technology. They claim that they will also present a joint statement from the ADA and EASD on insulin pumps.

8th Annual American Diabetes Association Montana Family Retreat February 20 - 22, 2015 Fairmont, MT 

Family Retreat is an event designed for all people living with type 1 diabetes. Education and activities are built specifically for families with children or teenagers with type 1 diabetes. There will be separate breakout sessions for parents, teenagers, and children.

Registration fees include all meals, activities, and hotel room for Friday evening through Sunday morning.  Families or groups of 6 or more will be charged additional fees for a second room. ($180 Adults, 18 and over, $60 Children, 4-17 years old, Children 3 years and younger are free - financial assistance is available.)

62nd Annual Advanced Postgraduate Course (ADA) February 27 - March 1, 2020 -  New York City, NY

A medical conference much like other scientific sessions, leading diabetes experts will give presentations on the latest in diabetes research and care, with small networking sessions thrown in for good measure. Targeted primarily for physicians, physician assistants, nurses, nurse practitioners, dietitians, pharmacists, psychologists, certified diabetes educators, and other health care professionals who care for patients with diabetes and who manage the complications related to this disease.

March

15TH Annual Rachmiel Levine Diabetes & Obesity Symposium March 1 - 4, 2015 - San Diego, CA

Made possible by the Beckman Research Institute of City of Hope, held in association with the Endocrine Society annual meeting and T1D Exchange. This is the meeting that I wish I could attend, because it covers some amazing topics: new biomarkers and drug targets, epigenetics (A debate on virus or “not a virus”) talks about the DCCT, inflammation, live debates, beta-cell function, islet cell reprogramming, and much more. (If anyone is going, please get in contact with me at theperfectd [at] gmail.com because I want to pick your brain!)

2015 Type One Nation Research Summit March 7, 2020 - Bethesda, MD

“We are thrilled to provide this unique opportunity for education and dialogue with leading experts and researchers in the type 1 diabetes (T1D) field on Saturday, March 7, 2020 at no cost to the attendees. In addition to the main program, we offer an exhibit hall full of all the latest and greatest in T1D education, resources and technology, as well as a Youth Program and Teen Track with age-appropriate guest speakers and activities. In 2014, the TypeOneNation Research Summit attracted over 800 individuals from the Mid-Atlantic region and we are looking forward to another great year!New this year — “Taking T1D to School” session.Admission is FREE with suggested donation. Buffet lunch is provided. Registration is REQUIRED and opens here on January 7th.”

ENDO 2015 (Endocrine Society) March 5 - 8, 2015 - San Diego, CA

Remember that endocrinology is not just about diabetes; it’s about the entire endocrine system. While the annual conference does have diabetes sessions, it’s not the primary focus.

TYOCD (Taking Control of Your Diabetes) March 7, 2020 - Santa Clara, CA 

TCOYD is a one-day program with tracks for both Type 1 and Type 2 individuals (and their friends and family, of course). Those who attend will have opportunities to learn about the latest tools, tips, techniques, and technology to help live healthier lives with diabetes. What I love about this program is that it was founded and is run by physicians who have intimate knowledge of diabetes; they have the disease! Many of the speakers also have Type 1 or Type 2 diabetes, so it’s not as if it’s a “do as I say and not as I do, because I don’t have a clue” program. If you have one coming to your area, you’re fortunate!

The Diabetes UnConference March 13 - 15, 2015 - Las Vegas, NV

The first peer-to-peer idea exchange and support conference for all adults with Type 1 and Type 2 diabetes. Unlike other conferences geared to patients, this conference has no keynotes or research/expert presentations; just discussions facilitated by those with diabetes about topics that may be difficult to have with people who don’t have diabetes!

American Diabetes Association (ADA) Expo March 14, 2015 - New York, NY 

The American Diabetes Association Expo is a one-day exposition where one can peruse through exhibits and talk with professionals and those who are looking to promote items that may help people with diabetes manage the disease. There are health screens and demonstrations and is open and free for everyone. (If you know of anyone who may be at risk, bring them to one of these.)

Bay Area Diabetes Summit March 14th, 2015 - Palo Alto, CA

The Bay Area Diabetes Summit is a collaborative effort of medical providers, community organizations, and medical institutions throughout the Bay Area. Dr. Bruce Buckingham of Stanford University and Dr. Ed Damiano of Boston University, developer of the Bionic Pancreas, will be the keynote speakers at the Summit.

The Summit is open to all adults with T1D and their spouses, friends, and significant others, parents, caregivers, and family members of children with T1D. Children with T1D and their siblings can register for a Kids Camp offered by DYF counselors and staff.

Type One Nation Summit (Southwest Ohio) March 15, 2020 - Cincinnati, OH

Featuring several breakout sessions and two nationally-known keynote speakers, this event is expected to attract 500-700 attendees.

TYOCD (Taking Control of Your Diabetes) March 28, 2020 - Austin, TX

TCOYD is a one-day program with tracks for both Type 1 and Type 2 individuals (and their friends and family, of course). Those who attend will have opportunities to learn about the latest tools, tips, techniques, and technology to help live healthier lives with diabetes. What I love about this program is that it was founded and is run by physicians who have intimate knowledge of diabetes; they have the disease! Many of the speakers also have Type 1 or Type 2 diabetes, so it’s not as if it’s a “do as I say and not as I do, because I don’t have a clue” program. If you have one coming to your area, you’re fortunate! (They’re missing the entire southeastern portion of the United States.)

April

American Diabetes Association (ADA) Expo April 18, 2015 - Chicago, IL

The American Diabetes Association Expo is a one-day exposition where one can peruse through exhibits and talk with professionals and those who are looking to promote items that may help people with diabetes manage the disease. There are health screens and demonstrations and is open and free for everyone. (If you know of anyone who may be at risk, bring them to one of these.)

Diabetes Sisters Annual Conference  April 24 - 26, 2015 Raleigh, NC

If you are looking for a conference that focuses on being a woman with diabetes, then look no further. Both Type 1 and Type 2s are welcomed with open arms and significant others are offered opportunities to talk (privately and separately) while you attend the conference. This is an opportunity to learn from other women and bask in the camaraderie of friends made (who just happen to also have diabetes).

TYOCD (Taking Control of Your Diabetes) April 25, 2015 - Honolulu, HI

TCOYD is a one-day program with tracks for both Type 1 and Type 2 individuals (and their friends and family, of course). Those who attend will have opportunities to learn about the latest tools, tips, techniques, and technology to help live healthier lives with diabetes. What I love about this program is that it was founded and is run by physicians who have intimate knowledge of diabetes; they have the disease! Many of the speakers also have Type 1 or Type 2 diabetes, so it’s not as if it’s a “do as I say and not as I do, because I don’t have a clue” program. If you have one coming to your area, you’re fortunate! (They’re missing the entire southeastern portion of the United States.)

GTC Diabetes Summit 2015 April 27-29, 2015 - Boston, MA

Got $2095? Then this conference is for you.

According to the website, that $2095 will get you research, partnership opportunities and network with academia, venture capital, government, small/medium size biotech, big pharma and healthcare organizations. The summit includes the Diabetes Drug Discovery and Development Conference, dealing with the clinical side of things. The Diabetes Partnering & Deal-Making Conference dives into opportunities for partnerships, funding, licensing, and the financial bits of it all.

(Now, that all being said… If you look at the speakers, I wish I had the $2095 to attend. Some of them are the top researchers in the diabetes community.)

May

Carb DM’s 3nd Annual Mother-Daughter Weekend May 1-3, 2015 - Dublin, CA

This amazing event is for preteen/teen girls with T1D and their moms. This weekend focuses on T1D from a female perspective and addresses the female cycle from puberty to pregnancy and how it affects and is affected by T1D. Mother daughter communication, healthy body image, talking with peers and significant others about T1D, and more will be discussed.

AACE 24th Annual Scientific and Clinical Congress (American Association of Clinical Endocrinologists) May 13 -17, 2015 Nashville, TN

TYOCD (Taking Control of Your Diabetes) May 16, 2015-  Kansas City, KS

TCOYD is a one-day program with tracks for both Type 1 and Type 2 individuals (and their friends and family, of course). Those who attend will have opportunities to learn about the latest tools, tips, techniques, and technology to help live healthier lives with diabetes. What I love about this program is that it was founded and is run by physicians who have intimate knowledge of diabetes; they have the disease! Many of the speakers also have Type 1 or Type 2 diabetes, so it’s not as if it’s a “do as I say and not as I do, because I don’t have a clue” program. If you have one coming to your area, you’re fortunate! (They’re missing the entire southeastern portion of the United States.)

30th Annual Clinical Conference on Diabetes (ADA) May 21 - 24, 2015,  Orlando, FL

While not patient-centric, attendees will hear “cutting-edge research translated into clinical practice”. The 30th Annual Clinical Conference is designed specifically for primary care and diabetes specialty physicians, doctor of osteopathy, podiatrists, pharmacists, physician assistants, nurse practitioners, nurses, psychologists and dietitians, certified diabetes educators and other health care professionals who care for patients with diabetes, at risk for diabetes, and who manage diabetes related complications.

Students With Diabetes National Conference May 22 - 24, 2015 - Tampa, FL

A conference for young adults aged 18 - 30 from all over the country who want to learn about the latest in technology, research, and more from many amazing speakers.

June

 75th Scientific Sessions (ADA) June 5-9, 2015 - Boston, MA

The “big” medical conference. While not specifically designed for the layperson with diabetes, many advocates do attend and sit in on sessions. Many study results are presented. Last year’s presentations weren’t mind-blowing, but we have a feeling that some big study results are on the horizon.

July

MasterLab (Diabetes Advocates) July 7 -8, 2015 - Orlando, FL

For anyone who is interested in learning how easy it is to raise awareness (and your voice) for diabetes advocacy, attend this program. While held in the same space as Friends for Life’s conference, it’s a separate conference. Last year’s program was amazing, and this year’s is promised to be even better!

Friends for Life July 6 - 12, 2015 Orlando, FL 

This is the de facto gold standard for any family with diabetes. It’s being held this year at Disney’s Coronado Springs Resort.

Room rates are $149 + tax. This rate is available from July 3, 2020 to July 13, 2015. You may reserve a room, buy park tickets, make Disney Dining reservations, and arrange for free Disney Transportation from the Orlando Airport to the hotel online at www.disneyurl.com/ChildrenWithDiabetes2015Conference.

2015 Practical Ways to Achieve Targets in Diabetes Care July 16, 2020 - 19, 2015 - Keystone, Colorado

While not a patient conference, worth taking a look at to see what’s being discussed. “This course is designed to help healthcare providers caring for patients with diabetes, including but not limited to, endocrinologists/diabetes specialists, internists, pediatricians, family physicians, physician assistants, medical residents, fellows, nurse practitioners, nurses, dietitians and certified diabetes educators.”

August

AADE 15 (American Association  August 5-8, 2015 - New Orleans, LA

Ernest N. Morial Convention Center. Registration will be open in March, 2015.

September

CWD Focus on Technology at the Disneyland Hotel September 18 - 20, 2015 - Anaheim, California 

51st EASD Annual Meeting September 14-18, 2015 (European Association for the Study of Diabetes) - Stockholm, Sweden

This is the European “big” medical conference, much like ADA’s Scientific Sessions.

TYOCD (Taking Control of Your Diabetes) September 26, 2015 San Diego, CA

TCOYD is a one-day program with tracks for both Type 1 and Type 2 individuals (and their friends and family, of course). Those who attend will have opportunities to learn about the latest tools, tips, techniques, and technology to help live healthier lives with diabetes. What I love about this program is that it was founded and is run by physicians who have intimate knowledge of diabetes; they have the disease! Many of the speakers also have Type 1 or Type 2 diabetes, so it’s not as if it’s a “do as I say and not as I do, because I don’t have a clue” program. If you have one coming to your area, you’re fortunate! (They’re missing the entire southeastern portion of the United States.)

October

American Diabetes Association (ADA) Expo October 10, 2015 - Minneapolis, MN

The American Diabetes Association Expo is a one-day exposition where one can peruse through exhibits and talk with professionals and those who are looking to promote items that may help people with diabetes manage the disease. There are health screens and demonstrations and is open and free for everyone. (If you know of anyone who may be at risk, bring them to one of these.)

American Diabetes Association (ADA) Expo October 17, 2015 - Houston, TX

The American Diabetes Association Expo is a one-day exposition where one can peruse through exhibits and talk with professionals and those who are looking to promote items that may help people with diabetes manage the disease. There are health screens and demonstrations and is open and free for everyone. (If you know of anyone who may be at risk, bring them to one of these.)

TYOCD (Taking Control of Your Diabetes) October 17, 2015 - Omaha, NE

TCOYD is a one-day program with tracks for both Type 1 and Type 2 individuals (and their friends and family, of course). Those who attend will have opportunities to learn about the latest tools, tips, techniques, and technology to help live healthier lives with diabetes. What I love about this program is that it was founded and is run by physicians who have intimate knowledge of diabetes; they have the disease! Many of the speakers also have Type 1 or Type 2 diabetes, so it’s not as if it’s a “do as I say and not as I do, because I don’t have a clue” program. If you have one coming to your area, you’re fortunate! (They’re missing the entire southeastern portion of the United States.)

Friends for Life Canada at the Marriott Gateway on the Falls October 23 - 25, 2015 - Niagara Falls, Ontario, Canada 

Registration is priced on a per person basis for everyone ages 5 and older. Early registration rates will be $50/person. “Please note that we expect the conference to sell out and do not plan on having on-site registration.” You must register separately for the conference and hotel. Registering for the hotel does not register your family for the conference itself.

Friends for Life UK 2015 October 30 - November 1, 2020 Old Windsor, Berkshire, UK

Note: You must register separately for the conference and hotel. Registering for the hotel does not register your family for the conference itself. Conference Registration will open in February 2015.

November

TYOCD (Taking Control of Your Diabetes) November 21, 2015 -  Glendale/Phoenix, AZ

TCOYD is a one-day program with tracks for both Type 1 and Type 2 individuals (and their friends and family, of course). Those who attend will have opportunities to learn about the latest tools, tips, techniques, and technology to help live healthier lives with diabetes. What I love about this program is that it was founded and is run by physicians who have intimate knowledge of diabetes; they have the disease! Many of the speakers also have Type 1 or Type 2 diabetes, so it’s not as if it’s a “do as I say and not as I do, because I don’t have a clue” program. If you have one coming to your area, you’re fortunate! (They’re missing the entire southeastern portion of the United States.)

World Diabetes Congress November 30 - December 4, 2020  -  Vancouver, Canada

Experts in diabetes care from around the world will exchange diabetes research and best practices. Physicians, scientists, nurses, educators and other healthcare professionals, as well as government officials, policy makers and representatives from 230 IDF Member Associations will gather to learn, discover and connect.

The WDC 2015 will coincide with the expiration of the current Millennium Development Goals and the adoption of the new Post-2015 Development Framework, a major push for expanded access to diabetes prevention, treatment and a cure.

PLEASE NOTE:

We are still waiting on dates for the Diabetes Technology Society meetings.   It is also unclear is there will be another National Conference on Mental Health Issues of Diabetes.

I did not include “invite only” conferences.

As always, there are bound to be more opportunities to meet other people with diabetes, learn about the disease, and advocate. These are just a few. As I hear of more, I’ll post them here.

Two Minute Diabetes Advocacy: CGM Medicare Coverage

708615_95129272It’s time to be a Two Minute Diabetes Advocate!

I’m keeping this short and sweet that you can understand the importance of this bill and take action on it in under two minutes.

Senate Bill: S.2689

‘Medicare CGM Access Act of 2014′

Even if you are a parent of a child with diabetes, this is an action you need to take. (This bill will eventually help with artificial pancreas systems, so it does matter to all of us.)

85% percent of Type 1s are adults. We’re living longer and with less complications. Many of us are headed for Medicare or are already there. It’s shocking to know that if you’re on Medicare, you are NOT covered for a continuous glucose monitor (CGM).

Imagine having a technology that helps you and having it covered by your insurance - and then you can’t get the device or sensors covered because you’re on Medicare.

That’s not a world I want to live in.

So, we’re rising up to support those who can help get CGMs covered by Medicare: U.S. Senators Susan Collins (R-ME) and Jeanne Shaheen (D-NH). Here’s the press release about the introduction of the bill from JDRF. Lots of good info. 

What can you do?

JDRF is leading the campaign. They’ve set up a click to email campaign for your senators. All you do is fill out your info and add a personal message and send it on its way. So…

1) Click here and fill out the email form. 

2) Add your personal message. You can even copy and paste this:

I have diabetes and I am worried about my future. 

I am asking you for your support on this bill; your co-sponsorhip would be even better! Continuous glucose monitors (CGM) have been shown to help prevent hospitalizations and emergency room visits. To not permit coverage of this technology is fiscally irresponsible for Medicare, as it will save money in the long run. 

OR:

A loved one has diabetes and I am worried about their future. 

I am asking you for your support on this bill; your co-sponsorhip would be even better! Continuous glucose monitors (CGM) have been shown to help prevent hospitalizations and emergency room visits. To not permit coverage of this technology is fiscally irresponsible for Medicare, as it will save money in the long run. 

(Skip over the ‘print this message to personalize’ if you want.)

3) That’s it. Go back to your day.

If you’re feeling extra ambitious, share this post with your friends and family and help show the Senate that while this is NOT a cure, it will help those with diabetes live well until there is one. (Click on the email link below this post or share it on FB or Twitter…)

You can also sign this petition from JDRF to Medicare.

Bookmark CGMSafely.com - it’s the latest grassroots advocacy movement begun by the amazing Bennet. You’ll get the latest info and actions on CGM here.

 

Your 2014 Diabetes Conference Calendar!

543862_59738162

After not being able to find a single source for diabetes events and conferences that might be of interest for those who have diabetes and/or advocate for diabetes, I decided to create one.

Ta-da.

Please note that this is U.S.-centric, as I currently live in the United States. (Most of me. My pancreas is currently on the lam somewhere where it cannot be extradited.) However, I have added some international conferences. Most of these can be attended by the hoi polloi, but some do require a medical designation/degree (although a press pass may provide entry). These are regional or national shindigs, not local groups or walks. 

If there is one that I have missed, please notify me at theperfectd [at] gmail [dot] com so I can add it. I will be updating this calendar throughout the year so I suggest you bookmark this page now. (Go ahead. I’ll wait.) 

Click on the title of the conference/event for the website link/additional information.

January

Winter Slipstream 2014 (Connected in Motion) January 24 - 26, 2014 Haliburton, ON Canada

If you’re sporty and love The Great White North (to which the latter I can wholeheartedly attest), then go hang out with other Type 1s and do some cold weather athletic stuff.

February

Taking Control of Your Diabetes February 8, 2020 - Pala, CA

TCOYD is a one-day program with tracks for both Type 1 and Type 2 individuals (and their friends and family, of course). Those who attend will have opportunities to learn about the latest tools, tips, techniques, and technology to help live healthier lives with diabetes. What I love about this program is that it was founded and is run by physicians who have intimate knowledge of diabetes; they have the disease! Many of the speakers also have Type 1 or Type 2 diabetes, so it’s not as if it’s a “do as I say and not as I do, because I don’t have a clue” program. If you have one coming to your area, you’re fortunate! (They’re missing the entire southeastern portion of the United States.)

61st Annual Advanced Postgraduate Course February 17 - 19, 2014 - San Francisco, CA

A medical conference much like other scientific sessions, leading diabetes experts will give presentations on the latest in diabetes research and care, with small networking sessions thrown in for good measure. (Tip of the hat to Mark Harmel, MPH and Deb Ruppert of the suggestion!)

American Diabetes Association Expo February 22, 2020 - Denver, CO

The American Diabetes Association Expo is a one-day exposition where one can peruse through exhibits and talk with professionals and those who are looking to promote items that may help people with diabetes manage the disease. There are health screens and demonstrations and is open and free for everyone. (If you know of anyone who may be at risk, bring them to one of these.)

March

American Diabetes Association Expo March 1, 2020 - Salt Lake City, UT

The American Diabetes Association Expo is a one-day exposition where one can peruse through exhibits and talk with professionals and those who are looking to promote items that may help people with diabetes manage the disease. There are health screens and demonstrations and is open and free for everyone. (If you know of anyone who may be at risk, bring them to one of these.)

American Diabetes Association’s Call To Congress First week of March, 2014 - Washington, DC

The American Diabetes Association Expo is a one-day exposition where one can peruse through exhibits and talk with professionals and those who are looking to promote items that may help people with diabetes manage the disease. There are health screens and demonstrations and is open and free for everyone. (If you know of anyone who may be at risk, bring them to one of these.)

Taking Control of Your Diabetes March 8, 2020 - Sacramento, CA

TCOYD is a one-day program with tracks for both Type 1 and Type 2 individuals (and their friends and family, of course). Those who attend will have opportunities to learn about the latest tools, tips, techniques, and technology to help live healthier lives with diabetes. What I love about this program is that it was founded and is run by physicians who have intimate knowledge of diabetes; they have the disease! Many of the speakers also have Type 1 or Type 2 diabetes, so it’s not as if it’s a “do as I say and not as I do, because I don’t have a clue” program. If you have one coming to your area, you’re fortunate! (They’re missing the entire southeastern portion of the United States.)

American Diabetes Association Expo March 15, 2020 - New York City, NY

The American Diabetes Association Expo is a one-day exposition where one can peruse through exhibits and talk with professionals and those who are looking to promote items that may help people with diabetes manage the disease. There are health screens and demonstrations and is open and free for everyone. (If you know of anyone who may be at risk, bring them to one of these.)

JDRF Government Day Sometime in the middle of March, 2014 - Washington, DC

Each year, JDRF (Juvenile Diabetes Research Foundation) swarms onto Capitol Hill to talk diabetes to Congress. If you want to be a part of it, get in touch with your local JDRF chapter and get involved. There are also opportunities to meet with your representatives when they are at their “home offices” as well, so if you can’t make it to DC, you can still make a difference.

American Diabetes Association Expo March 29, 2020 - San Antonio, TX

The American Diabetes Association Expo is a one-day exposition where one can peruse through exhibits and talk with professionals and those who are looking to promote items that may help people with diabetes manage the disease. There are health screens and demonstrations and is open and free for everyone. (If you know of anyone who may be at risk, bring them to one of these.)

April

American Diabetes Association Expo April 5, 2020 - Chicago, IL

The American Diabetes Association Expo is a one-day exposition where one can peruse through exhibits and talk with professionals and those who are looking to promote items that may help people with diabetes manage the disease. There are health screens and demonstrations and is open and free for everyone. (If you know of anyone who may be at risk, bring them to one of these.)

American Diabetes Association Expo April 5, 2020 - Seattle, WA

The American Diabetes Association Expo is a one-day exposition where one can peruse through exhibits and talk with professionals and those who are looking to promote items that may help people with diabetes manage the disease. There are health screens and demonstrations and is open and free for everyone. (If you know of anyone who may be at risk, bring them to one of these.)

Taking Control of Your Diabetes April 12, 2020 - Honolulu, HI

TCOYD is a one-day program with tracks for both Type 1 and Type 2 individuals (and their friends and family, of course). Those who attend will have opportunities to learn about the latest tools, tips, techniques, and technology to help live healthier lives with diabetes. What I love about this program is that it was founded and is run by physicians who have intimate knowledge of diabetes; they have the disease! Many of the speakers also have Type 1 or Type 2 diabetes, so it’s not as if it’s a “do as I say and not as I do, because I don’t have a clue” program. If you have one coming to your area, you’re fortunate! (They’re missing the entire southeastern portion of the United States.)

GTC Diabetes Summit 2014 - April 23 - 25, 2014 Boston, MA

Got $1995? Then this conference is for you.

According to the website, that $1995 will get you research, partnership opportunities and network with academia, venture capital, government, small/medium size biotech, big pharma and healthcare organizations. The summit includes the Diabetes Drug Discovery and Development Conference, dealing with the clinical side of things. The Diabetes Partnering & Deal-Making Conference dives into opportunities for partnerships, funding, licensing, and the financial bits of it all.

Diabetes Sisters National Conference April 25 - 27, 2014 - Washington, DC

If you are looking for a conference that focuses on being a woman with diabetes, then look no further. Both Type 1 and Type 2s are welcomed with open arms and significant others are offered opportunities to talk (privately and separately) while you attend the conference. This is an opportunity to learn from other women and bask in the camaraderie of friends made (who just happen to also have diabetes).

May

American Association of Clinical Endocrinologists (AACE) Annual Meeting May 14 - 18, 2014 - Las Vegas, NV

Medical conference for endos. Not geared to the person with diabetes (and not all diabetes related) but if you are so inclined you can attend.

Taking Control of Your Diabetes May 17, 2020 - Raleigh, NC

TCOYD is a one-day program with tracks for both Type 1 and Type 2 individuals (and their friends and family, of course). Those who attend will have opportunities to learn about the latest tools, tips, techniques, and technology to help live healthier lives with diabetes. What I love about this program is that it was founded and is run by physicians who have intimate knowledge of diabetes; they have the disease! Many of the speakers also have Type 1 or Type 2 diabetes, so it’s not as if it’s a “do as I say and not as I do, because I don’t have a clue” program. If you have one coming to your area, you’re fortunate! (They’re missing the entire southeastern portion of the United States.)

American Diabetes Association Expo May 17, 2020 - Los Angeles, CA

The American Diabetes Association Expo is a one-day exposition where one can peruse through exhibits and talk with professionals and those who are looking to promote items that may help people with diabetes manage the disease. There are health screens and demonstrations and is open and free for everyone. (If you know of anyone who may be at risk, bring them to one of these.)

Tamarack Ottawa Race Weekend 2014 May 23 - 25, 2014 Ottawa, ON Canada

For those who run with insulin, join others for the Ottawa races, which include a marathon. (And yes, the marathon is also for those who have working pancreases.) Run with others while developing friendships.

June

Taking Control of Your Diabetes June 7, 2020 - Washington, DC

The American Diabetes Association Expo is a one-day exposition where one can peruse through exhibits and talk with professionals and those who are looking to promote items that may help people with diabetes manage the disease. There are health screens and demonstrations and is open and free for everyone. (If you know of anyone who may be at risk, bring them to one of these.)

ADA 74th Scientific Sessions June 13 - 17, 2014 - San Francisco, CA

The big medical conference. While not specifically designed for the layperson with diabetes, many advocates do attend and sit in on sessions. Many study results are presented.

ICE/ENDO (The Endocrine Society) June 21 - 24, 2014 - Chicago, IL

Not specifically designed for diabetes, and most attendees must have a medical degree, but hey, you never know, right?

July

Friends for Life July 1 - 6, 2014 Orlando, FL 

This is the de facto gold standard for any family with diabetes. (In the past few years, they’ve begun offering an adult track, but it is geared to the parents and the young kids/teens that have the disease.)

While registration opens on Tuesday, July 1, no sessions occur during that day. On Wednesday, Thursday, and Friday, focus groups, screening, the Exhibit Hall, sessions, and events will occur. Saturday and Sunday are not sessions, but rather time to spend cultivating the friendships you’ve created while you’ve been attending.

Please note that this is the Fourth of July weekend. If you do not reserve rooms at the Marriott (or heck, anywhere in Orlando) early, you may not be able to get a room.

Registration includes conference attendance, shared meals, the Family and Friends Banquet, and one conference t-shirt. A processing fee is added to each registration that partially covers the cost of the registration system.Kids under the age of five are free. For everyone age five or over at the time of the conference, the per person price is:

  • $125 until March 30, 2020
  • $140 until May 31, 2020
  • $150 beginning June 1, 2020

American Diabetes Association Expo July 26, 2014 - Houston, TX

The American Diabetes Association Expo is a one-day exposition where one can peruse through exhibits and talk with professionals and those who are looking to promote items that may help people with diabetes manage the disease. There are health screens and demonstrations and is open and free for everyone. (If you know of anyone who may be at risk, bring them to one of these.)

August

American Association of Diabetes Educators (AADE) Annual Meeting August 6 - 9, 2014 - Orlando, FL

While not specifically designed for the layperson with diabetes (it’s geared towards CDEs, who we love and adore), many advocates do attend and sit in on sessions.

Friends for Life UK 2014  August 15-17, 2014 Old Windsor, Berkshire, England

See the Friends for Life conference above for the general idea. At this time, there’s no additional information.

September

Taking Control of Your Diabetes September 6, 2020 - Missoula, MT

TCOYD is a one-day program with tracks for both Type 1 and Type 2 individuals (and their friends and family, of course). Those who attend will have opportunities to learn about the latest tools, tips, techniques, and technology to help live healthier lives with diabetes. What I love about this program is that it was founded and is run by physicians who have intimate knowledge of diabetes; they have the disease! Many of the speakers also have Type 1 or Type 2 diabetes, so it’s not as if it’s a “do as I say and not as I do, because I don’t have a clue” program. If you have one coming to your area, you’re fortunate! (They’re missing the entire southeastern portion of the United States.)

EASD (European Association for the Study of Diabetes) September 15 - 19, 2014 -  Vienna, Austria

More of that medical professional conference ilk where large studies are presented. This one is across the pond.

Taking Control of Your Diabetes September 27, 2014 - Des Moines, IA

TCOYD is a one-day program with tracks for both Type 1 and Type 2 individuals (and their friends and family, of course). Those who attend will have opportunities to learn about the latest tools, tips, techniques, and technology to help live healthier lives with diabetes. What I love about this program is that it was founded and is run by physicians who have intimate knowledge of diabetes; they have the disease! Many of the speakers also have Type 1 or Type 2 diabetes, so it’s not as if it’s a “do as I say and not as I do, because I don’t have a clue” program. If you have one coming to your area, you’re fortunate! (They’re missing the entire southeastern portion of the United States.)

October

American Diabetes Association Expo October 11, 2014 - Minneapolis, MN

The American Diabetes Association Expo is a one-day exposition where one can peruse through exhibits and talk with professionals and those who are looking to promote items that may help people with diabetes manage the disease. There are health screens and demonstrations and is open and free for everyone. (If you know of anyone who may be at risk, bring them to one of these.)

Taking Control of Your Diabetes October 18, 2020 - Amarillo, TX

TCOYD is a one-day program with tracks for both Type 1 and Type 2 individuals (and their friends and family, of course). Those who attend will have opportunities to learn about the latest tools, tips, techniques, and technology to help live healthier lives with diabetes. What I love about this program is that it was founded and is run by physicians who have intimate knowledge of diabetes; they have the disease! Many of the speakers also have Type 1 or Type 2 diabetes, so it’s not as if it’s a “do as I say and not as I do, because I don’t have a clue” program. If you have one coming to your area, you’re fortunate! (They’re missing the entire southeastern portion of the United States.)

DiabetesSisters’ Weekend for Women Conference October 24-25, 2014 - Los Angeles, California

If you are looking for a conference that focuses on being a woman with diabetes, then look no further. Both Type 1 and Type 2s are welcomed with open arms and significant others are offered opportunities to talk (privately and separately) while you attend the conference. This is an opportunity to learn from other women and bask in the camaraderie of friends made (who just happen to also have diabetes). Registration is $125 and

 

CWD Focus on Technology October 24 - 26, 2014  - Anaheim, California

This is a smaller conference offered by Children With Diabetes, focusing on…you guessed it… technology. For those who have interest in learning how to incorporate the latest tech and talk with those who are making that tech happen, this is a conference that you won’t want to miss!

November

Taking Control of Your Diabetes November 8, 2020 - San Diego, CA

TCOYD is a one-day program with tracks for both Type 1 and Type 2 individuals (and their friends and family, of course). Those who attend will have opportunities to learn about the latest tools, tips, techniques, and technology to help live healthier lives with diabetes. What I love about this program is that it was founded and is run by physicians who have intimate knowledge of diabetes; they have the disease! Many of the speakers also have Type 1 or Type 2 diabetes, so it’s not as if it’s a “do as I say and not as I do, because I don’t have a clue” program. If you have one coming to your area, you’re fortunate! (They’re missing the entire southeastern portion of the United States.)

American Diabetes Association Expo November 8, 2014 - Pittsburgh, PA

The American Diabetes Association Expo is a one-day exposition where one can peruse through exhibits and talk with professionals and those who are looking to promote items that may help people with diabetes manage the disease. There are health screens and demonstrations and is open and free for everyone. (If you know of anyone who may be at risk, bring them to one of these.)

American Diabetes Association Expo November 22, 2014 - Atlanta, GA

The American Diabetes Association Expo is a one-day exposition where one can peruse through exhibits and talk with professionals and those who are looking to promote items that may help people with diabetes manage the disease. There are health screens and demonstrations and is open and free for everyone. (If you know of anyone who may be at risk, bring them to one of these.)

American Diabetes Association Expo November 22, 2014 - Portland, OR

The American Diabetes Association Expo is a one-day exposition where one can peruse through exhibits and talk with professionals and those who are looking to promote items that may help people with diabetes manage the disease. There are health screens and demonstrations and is open and free for everyone. (If you know of anyone who may be at risk, bring them to one of these.)

PLEASE NOTE:

We are still waiting on dates for the Diabetes Technology Society meetings and the annual Insulindependence meeting. We also have scant information on the two additional CWD conferences after the main one in July.  It is also unclear is there will be another National Conference on Mental Health Issues of Diabetes.

I did not include “invite only” conferences.

As always, there are bound to be more opportunities to meet other people with diabetes, learn about the disease, and advocate. These are just a few. As I hear of more, I’ll post them here.

Obituary

965851_98019530To be published everywhere possible upon my, what I know will be, untimely demise. 

Christel Marchand Aprigliano, loving but surely exasperating wife of John and adoring-to-the-point-of-nausea mother of The Kid, passed away, mid-laugh, at the age of 109 after dancing the night away in Ibiza.

Born in the best place on earth and raised by caring parents who often wondered what to make of her, Christel excelled in talents that would make her neither rich nor famous: fudging blood sugar logs, injecting insulin on the sly in the middle of restaurants, knowing exactly how many Skittles it took to bring her back from a hypoglycemic breakdown but always forgetting to count them out while she was low, and coming up with snarky answers to the question: “Can you eat that?”.

Christel hated to be wrong, loved to be needed, and did what she could to make the world understand that diabetes should not be feared, often telling others to make diabetes their “bitch”. She also cursed like a sailor, much to the chagrin (and sometimes glee) of those around her.

Her life led her many places, geographically, mentally, and professionally. Carrying more than her share of guilt-filled baggage, she spent years wandering alone with her illness before she found compatriots who lit her way. The Diabetes Online Community brought her wisdom, joy, and occasional tears, but most of all, it brought her friends who understood her.

At the end of her life, she reflected on her days with Type 1 diabetes, saying simply this: “It sucked.”

The cure, while not ridding her of the complications she already had, gave her many enjoyable years of eating crème brûlée and running around without a purse filled with Glucolift. It did nothing, sadly, to stop her potty mouth.

Her blog, ThePerfectD, and other very cool projects with other very cool people, turned from the topic of diabetes to other worldly pursuits, including traveling to exotic places on a moment’s notice with just a bikini and a toothbrush or annoying her daughter because.she.could.

She would have told you to send memorial donations to the Diabetes Hands Foundation or JDRF, but after those non-profits disbanded because diabetes ceased to exist, she requests you eat a large spoonful  (or two) of Ben & Jerry’s Red Velvet Cake ice cream in her honor and dance like a happy fool until morning.

 

 

 

The Flu Shot & The Porcelain God

It's cute and orange, but I still don't want to pray to it.

It’s cute and orange, but I still don’t want to pray to it.

I hate to puke.

Whatever you call it: technicolor yawn, tossing your cookies, ralphing, or my favorite… “praying to the porcelain god”, I try to avoid doing it at all costs.

I don’t think there is anyone who thinks it’s something fun to do. (Please correct me if I’m wrong.)

“What’cha up to?”

“Not much. I’m bored, so I’m just going to puke my brains out. Want to come over and watch?” 

I get a flu shot every year now, because I have zero desire to lose my lunch (or dinner or breakfast) or feel like a freight train has run over me due to the inability of other people to wash their hands or cover their mouths.

A fellow T1 asked in a FB status about flu shots and I was surprised to see the myriad of responses. Some were positive, some were negative, and some left me scratching my head, wondering where they got their info.

I realize that if you’re reading my blog, you’ve got at least a few brain cells to rub together. (Take that compliment and run with it.) You may already have an opinion on flu shots, so let me give you some facts. (And then I’ll give you my opinion, because… well, it’s my blog.)

Here’s what the CDC has to say:

Over a period of 31 seasons between 1976 and 2007, estimates of flu-associated deaths in the United States range from a low of about 3,000 to a high of about 49,000 people. During a regular flu season, about 90 percent of deaths occur in people 65 years and older. The “seasonal flu season” in the United States can begin as early as October and last as late as May.

During this time, flu viruses are circulating in the population. An annual seasonal flu vaccine (either the flu shot or the nasal-spray flu vaccine) is the best way to reduce the chances that you will get seasonal flu and spread it to others. When more people get vaccinated against the flu, less flu can spread through that community.

So, read that last sentence again. Go ahead. I’ll wait.

Sometimes it’s not about you. It’s about the people around you. It’s about the woman ahead of you in line at the grocery store with the premature son at home. It’s about the guy next to you on the subway who takes care of his elderly parents. It’s the schoolteacher. The bus driver. The retail store employee who can’t take a week off because the paycheck pays the rent.

And the CDC page about the flu continues on to say who should definitely get a flu shot:

  • People who have certain medical conditions including asthma, diabetes, and chronic lung disease.
  • Household contacts and caregivers of people with certain medical conditions including asthma, diabetes, and chronic lung disease.

Look! We’re on the list! Hooray for us! And wait… those people around you? Yep. They’re on the list.

Getting a flu shot may not prevent you from getting the flu. As they say, nothing in life is guaranteed except death and taxes. But the likelihood of death by flu is diminished by getting a flu shot, which can prevent flu-related complications, per the CDC.

“But the flu vaccine has live viruses in it! No way am I taking something like that! I’ll just get the flu!”

That would be a no. No, a flu vaccine cannot cause you to get the flu. If you have a flu shot, you get a vaccine with viruses that have been ‘inactivated’ and are not infectious, or with no flu vaccine viruses at all.  If you get the vaccine through a nasal spray, while it does contain live viruses, the viruses are so weakened that the CDC claims it cannot cause the flu.

Influenza is a respiratory illness, but for some (like me), we get additional symptoms for free - like fertilizing the lawn or your floor or the inside of your wastebasket. For those who do get the flu, you’ll recover in a few days (up to two weeks). For others, it can progress to pneumonia, bronchitis, ear infections, sinus infections….or worse. I don’t want to be the “worse”. Hospitalization is worse. Death is worse.

(And healthy kids who die from influenza and didn’t get a flu shot? I can’t keep quiet about the need for everyone to get one. Check out Families Fighting Flu.)

You may have your reasons for not getting a flu shot. I’d love to hear them. Seriously.

If you haven’t gotten your flu shot, but plan on doing so, you can help the Juvenile Diabetes Research Foundation raise money by going to Walgreen’s or Duane Reade by October 31st and give them this coupon. The pharmacy will donate $1 for every flu shot, up to $100,00. I call that a win-win.

Now, onto my opinion.

I used to avoid getting a flu shot, down to flat out lying to my parents about getting one when I was younger. I’m petrified of needles and intramuscular injections. Seriously. What changed my mind? The realization that if I got sick, someone would have to take care of me and I would be putting them at risk and forcing them to take time off from work or taking them away from their own families. Financially? Being stuck in a hospital isn’t as bad as being stuck with a huge bill afterwards that could have been avoided.

Last year, we all got flu shots. And yes, when the flu came round, we did all get sick. ONE. DAY. EACH. Round robin style. I knew people who did not get a flu shot who spent weeks being sick - and then more weeks tending to other family members who got sick.

So, now I pull up my big girl pants, turn my face away and close my eyes while the nice medical person jabs me.

And the porcelain god in my house will hopefully have no one to pray in front of it.

Amen.