Taking a Diabetes Break with Tresiba

unnamed-2It’s happening for the first time in seventeen years.

I’ve decided to take a break from my insulin pump.

Granted, we’re not breaking up permanently. I’m just going to see other insulin regimens for a little while.

I need a break.

After a “naked” shower earlier this week, which always leaves me feeling elated and extra clean (no worries about scrubbing and ripping an insertion set off), I wrapped myself in a towel and glanced over at the counter where the next round of “Who wants to play a pancreas?” waited to be inserted.

And I just couldn’t do it. 

The thoughts shot quickly and unexpectedly through my brain:

  • “How much longer will I need to do this?”
  • “I don’t know how much longer I can do this.”
  • “I don’t want to do this.”
  • “Nope. Not doing this.”

And then I walked away.

Diabetes isn’t a part-time gig. We all know that. I can’t just not show up and expect to live much longer, so when I walked away after that little internal hissy-fit, reality set in and more productive thoughts trickled through:

  • “So, what can I do to change the way I’m feeling about putting another insertion set in?”
  • “What are my other options?”

Seventeen years with insulin pump therapy have produced some of the best control I’ve ever had. It’s also been a pain in [insert body parts]. Always attached, always “almost” in the way. I have found that I hug my daughter differently based on where my infusion set is placed and where my pump is on my body.

I love my pump, but I need a break.

Tresiba

Nothing this major should be decided alone, although in the end, it’s me that gets to decide. My hissy-fit included a frantic text to my husband, telling him that I was going off the pump “right now!!!” and I was going to pick up a prescription of Tresiba. I had discussed it with my CDE a few weeks ago and we switched my “back up” insulin to it. (I have come close, but never had to use my back up insulin.)

Fortunately, one of us (hint: not me) is much more logical and rational. He reminded me that this was a major change and that he’d prefer to be around when I began the therapy change “just in case.” While I wear a CGM and mostly react to the alarms, I’m either home alone or just with the Kid most of the day. We agreed that I would wait until today to take a break.

Decision made, I put on my big girl pants (after all, I was still in a towel) and inserted my CGM sensor and my infusion set. Just to spite me, neither one hurt a bit or bled.

nph-1I have only used an insulin pen twice in my life. I had to read and re-read the instructions to make sure that I was doing it right. I instinctively rolled the pen in my hand to make sure it was mixed. (NPH, anyone?) Old habits die hard.

I just took my first injection of long-acting insulin in seventeen years. 

New adventure. New medications. New challenges.

But a break all the same. Wish me luck!

 

Diabetes KonMari: Supplies

Have you heard about The KonMari Method? It’s the concept of de-cluttering your life developed by Marie Kondo. She wrote this book:

51H8x07Fd7L._SX351_BO1,204,203,200_The Life-Changing Magic of Tidying Up: The Japanese Art of Decluttering and Organizing

She wants you to only keep things that “spark joy” and to find a place for everything in your home. Obvious, she does not have diabetes, because she would know that it’s hard to get that spark of joy from a lancet. But.. I kind of get what she means. (I’ll explain later.)

I was curious (her “method” is hot on Facebook and Pinterest), so I took a gander at what her revolutionary concepts boiled down to – and if I could adapt them for life with diabetes.

KonMari: Diabetes Supplies

Here’s what her main concepts are – and my take on whether I can (or you can) KonMari my diabetes supplies. Some of what she espouses is a little touchy-feely, but if you can go with the flow or look past “thanking your items,” you might find Diabetes KonMari could work for you, too.

  • Tidy up all at once, not little by little. The idea that if you just try to organize a little bit every day, you’ll end up organizing just a little bit every day.
    • I feel like that’s all I do with a kid. Tidy up little by little – a Lego here, a stray sock there. You know the phrase: “Death by a thousand cuts?” That’s what tidying up little by little can feel like. Anything that I can do for my diabetes to “tidy up all at once in one fell swoop,” I’m willing to do. Also, need to check those expiration dates, right? So, let’s do this.
  • Sort by category, not by location. “The best sequence is this: clothes first, then books, papers, komono (miscellany), and lastly, mementos…Sticking to this sequence sharpens our intuitive sense of what items spark joy inside us.”
    • OK, it’s all komono with diabetes, right? Grab all your diabetes supplies and everything related to diabetes. Everything. Put them all together. Wait. Did you forget that box of lancets hiding in the other bathroom? That one, too. The meter in your purse? The extra meter in your suitcase? Glucose tabs. Juice boxes. Anything and everything to do with diabetes, down to the extra supplies in your emergency kit. Put it all there, sweetie. Everything.
  • Start by discarding, all at once, intensely and completely. “Do not even think of putting your things away until you have finished the process of discarding,” she exhalts.
    • I had diabetes detritus that I didn’t even know I still owned. Items that I’m sure I said once: “I might need that.” and threw it in a box. Lancets from 2004, still in the packaging. (Admit it… you probably do, too, if you’ve had diabetes that long.) I culled my diabetes supplies down from a mountain to a fairly robust mound, putting some items into piles for donation (if I could) and trash (if I couldn’t). Gotta say it was cathartic. And here’s why…
  • sparks-1-1553324-640x480Keep only the things that “spark joy”. She wants us to pick up every item and ask, “Does this spark joy?” She tells us: “Keep only those things that speak to your heart. Then take the plunge and discard all the rest.” Let’s be real. We’re not going to hold every item. But…
    • “What the hell, Christel!?! (Yes, that rhymes.) How can diabetes supplies give me joy?” Yeah, yeah. I’m right there with you. Except that I have this one favorite lancing device that I use, so why do I have seven different other types of lancing devices that I will never use? Why do I keep infusion sets that I tried once and abhorred? Why do I have glucose tabs that make me gag in the bottom of a backpack? (I’d rather eat table sugar.)
    • The point of this is to figure out what you do like and keep those items and get rid of the rest. If you’re scared about losing your one lancing device you own, get another from your medical team or purchase one. (Or swap an unused one with someone you know.) Clear out the stuff you “might use someday if I use up everything else” and you’ll find you have the diabetes supplies that may not bring you unbounded joy, but don’t suck.
  • Once you’ve finished discarding things — (selling them, donating them, giving them away, or ::gasp:: throwing them away) — only then do you store them. KonMari tells you to think about why you have a particular item(s), and then think hard about the role it plays in your life. Ask when you got it. Why you got it. How about that spark? If you decide it’s not worth keeping, you can say, “Thank you for teaching me what doesn’t suit me,” and let it go.
    • Um… I don’t think you have to touch and thank each lancet separately. You’d be “thanking” for a long time. But think about what you don’t need.
    • But in donating these items, you’re helping someone else. Books on diabetes that you don’t need? Donate them to your local library or share them with your local diabetes group. Ask if anyone could you unused lancets, syringes, meters, etc. and gift them to someone who will be sparked by joy. And if you can’t find anyone, you can always donate to Insulin For Life – USA. (Link and info on what you can donate here.) But throw away any expired or used items. Those aren’t helping anyone – especially you.
  • If you use it, you need to put it away. Storage is key. “Clutter is caused by a failure to return things to where they belong. Therefore, storage should reduce the effort needed to put things away, not the effort to get them out.”
    • I bought clear plastic bins with locking lids and put my most used items (strips, pump supplies, and Dexcom sensors) on a shelf that I can easily access. Extras? Storage that is easily accessible but out of the way. What about glucagon? Glucose tabs? Those lannnnnccccetttts? Find a place for them to “belong” and keep them there until they are needed. Nothing is worse that trying to find a glucagon kit shoved in a drawer.
  • Eliminate visual clutter. “By eliminating excess visual information that doesn’t inspire joy, you can make your space much more peaceful and comfortable.”
    • Sounds funny, right? “I keep the meter on my bedside table, along with my juicebox and my glucose tabs and my receiver and…” We talk about being overwhelmed with our supplies/devices sometimes, so this is what I’m doing:
      • My bedside drawer holds my meter, my glucose tabs/juicebox, etc. At night, I take them out and if they didn’t get used, they go back into the bedside drawer in the morning. It’s a hard habit, but I like being able to look over in the morning and see the absence of diabetes on the night table.
      • I’ve begun to find storage places and taking diabetes out of my line of sight, but I know where everything is stored now.

empty-box-1312775-639x424Would you be wiling to try and KonMari your diabetes? Do you think this method can’t be used for diabetes? Or do you have a better method to “spark joy?” I’m curious as to your thoughts, too!

Bloodborne Infections from Diabetes Supplies? Yep. You read that right.

biohazard-3-1307153-640x480The longer I have diabetes, the more I learn about how we, as a community, have a lot to learn.

If you’ve ever been a patient at a hospital or a health clinic, you know that the goal is to send you home healthier than when you arrived.

Unfortunately, it doesn’t always happen and PWDs are more susceptible. It’s not just blood glucose levels we need to worry about while we’re under a medical team’s care. We also have to worry about bloodborne virus transmissions. I didn’t know  until I started to do some research. What I found shocked me – and I’m sure it will shock you as well.

Hepatitis B

Hepatitis B is a bloodborne infection that can cause serious, deadly issues (think liver cancer or cirrhosis). It can be transmitted a number of ways, including sharing of needles or blood glucose testing equipment.

Hepatitis B Virus (HBV) can survive outside the body at least 7 days and still be capable of causing infection. Think shared blood glucose testing equipment. Anywhere. Are you sure that the health care professional has washed his/her hands before putting on those gloves? Did you see them disinfect the BG meter? Are they using a single use lancet? Did an infected person’s blood land on the cart, then transferred blood to the new pair of gloves the team member just put on when he/she picked up the meter and moved the cart?

Even worse? Think about your kids letting a friend use a lancet device “just for fun.” Sadly, even kids can have Hepatitis B.

When you start to think about all the ways this virus can be transmitted, you might begin to feel sick to your stomach. (That’s one of the symptoms, by the way, but many of the symptoms are “run of the mill” when you have diabetes.)

But where it’s happening most often is long-term care facilities. And these are preventable.

Between 2008 – 2014, there have been 23 reported outbreaks, 175 outbreak-associated cases, >10,700 persons notified for screening. 17 of the outbreaks occurred in long-term care facilities, with at least 129 outbreak-associated cases of HBV and approximately 1,600 at- risk persons notified for screening. What should worry you is this next statistic:

82% (14/17) of the outbreaks were associated with infection control breaks during assisted monitoring of blood glucose (AMBG). (http://www.cdc.gov/hepatitis/statistics/healthcareoutbreaktable.htm)

There have also been cases of Hepatitis B and Hepatitis C transmissions at hemodialysis clinics (and if you think that’s not diabetes related, think of how many of us may be on dialysis for kidney disease) and home healthcare agencies.

It’s not like nurses or doctors think: “How can I hurt patients today?” But these outbreaks are PREVENTABLE. How? By following proper infection protocol policies and training healthcare professionals and patients to not share needles or lancing devices (and a few more steps).

Now, I’m sure you’re thinking: “Why should I care about this?” Simple.

Someday, it could be you.

Or someone you love.

And if we don’t ensure that these infection risks are mitigated, then who will?

What You Can Do

DPAC_ASKanEXPERT_infectionJoin the online presentation of DPAC’s Ask The Expert presentation on Tuesday, January 26th at 12pm.

Diabetes Patient Advocacy Coalition (DPAC) went straight to the CDC and they’re pleased to have a passionate expert to share her thoughts and what we, as the patient community, can do.

Dr. Pamela Allweiss, MD, MPH, Medical Officer for the Division of Diabetes Translation at the Centers for Disease Control and Prevention (CDC) will discuss the risks of virus transmission in healthcare settings (hospitals, clinics, and long-term care facilities) in the United States.

Healthcare-associated infections (HAI) are a serious threat to even the healthiest patients; people with diabetes are at higher risk than the general population. Did you know that there have been outbreaks of Hepatitis B in healthcare settings because of improper infection protocol and diabetes supplies?

During this presentation, you will have an opportunity to learn more about why this is happening in our healthcare system, ask questions, and discover how to mitigate these risks and ways to engage your state policymakers to enforce infection control protocols to ensure your safety.

Register by clicking here. Even if you can’t attend the live presentation, you can still send questions to info [at] diabetespac.org ahead of time and get a link to the recording after the presentation ends.

We’ve got enough to worry about. Let’s work to worry about one.less.thing.

 

Your 2016 Diabetes Conference Calendar!

543862_59738162

After not being able to find a single source for diabetes events and conferences that might be of interest for those who have diabetes and/or advocate for diabetes, I decided to create one. Begun in 2014, it’s become a popular rundown for all diabetes conferences and events that you might be interested in attending.

Ta-da.

Please note that this is U.S.-centric, as I currently live in the United States. (Most of me. My pancreas is currently on the lam somewhere where it cannot be extradited.) However, I have added some international conferences. Most of these can be attended by the hoi polloi, but some do require a medical designation/degree (although a press pass may provide entry). These are regional or national shindigs, not local groups or walks. 

If there is one that I have missed, please notify me at theperfectd [at] gmail [dot] com so I can add it. I will be updating this calendar throughout the year so I suggest you bookmark this page now. (Go ahead. I’ll wait.) 

Click on the title of the conference/event for the website link/additional information.


 

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January

52nd Annual Clinical Diabetes and Endocrinology Conference (National Jewish Health) January 23 – 26, 2016 – Snowmass, CO

This conference is primarily for endocrinologists, primary care physicians, and other health care professionals with an interest in diabetes, endocrinology and metabolism. That being said, perhaps you want to mention it to YOUR healthcare team?

February

TCOYD (Taking Control of Your Diabetes) February 20, 2016 – Anchorage, AK

TCOYD is a one-day program with tracks for both Type 1 and Type 2 individuals (and their friends and family, of course). Those who attend will have opportunities to learn about the latest tools, tips, techniques, and technology to help live healthier lives with diabetes. What I love about this program is that it was founded and is run by physicians who have intimate knowledge of diabetes; they have the disease! Many of the speakers also have Type 1 or Type 2 diabetes, so it’s not as if it’s a “do as I say and not as I do, because I don’t have a clue” program. If you have one coming to your area, you’re fortunate!

March

63rd Annual Advanced Postgraduate Course (ADA) March 4 – 6, 2016-  San Francisco, CA

A medical conference much like other scientific sessions, leading diabetes experts will give presentations on the latest in diabetes research and care, with small networking sessions thrown in for good measure. Targeted primarily for physicians, physician assistants, nurses, nurse practitioners, dietitians, pharmacists, psychologists, certified diabetes educators, and other health care professionals who care for patients with diabetes and who manage the complications related to this disease.

TCOYD (Taking Control of Your Diabetes) March 5, 2016 – Sacramento, CA 

TCOYD is a one-day program with tracks for both Type 1 and Type 2 individuals (and their friends and family, of course). Those who attend will have opportunities to learn about the latest tools, tips, techniques, and technology to help live healthier lives with diabetes. What I love about this program is that it was founded and is run by physicians who have intimate knowledge of diabetes; they have the disease! Many of the speakers also have Type 1 or Type 2 diabetes, so it’s not as if it’s a “do as I say and not as I do, because I don’t have a clue” program. If you have one coming to your area, you’re fortunate!

15TH Annual Rachel Levine Diabetes & Obesity Symposium March 6 – 9, 2016 – Long Beach, CA

Made possible by the Beckman Research Institute of City of Hope, held in association with the Endocrine Society annual meeting and T1D Exchange. This is the meeting that I wish I could attend, because it covers some amazing topics, including “Lowering the Barrier of Entry and Long-Term Commitment of Pharma in Type 1 Diabetes” and Diabetes Technology (a topic near and dear to many of our hearts!).

The Diabetes UnConference March 10 – 13, 2016 – Las Vegas, NV

The first peer-to-peer idea exchange and support conference for all adults with Type 1 and Type 2 diabetes. Unlike other conferences geared to patients, this conference has no keynotes or research/expert presentations; just discussions facilitated by those with diabetes about topics that may be difficult to have with people who don’t have diabetes!

The Diabetes Collective Pre-UnConference Sessions March 11, 2016 – Las Vegas, NV

Free and open to the general public, sessions will include Dr. Stephen Ponder’s Sugar Surfing, iLet information session, T1D and Pregnancy, policy advocacy, and more. Registration is required. This is for all adults impacted by diabetes. Childcare is not provided.

Bay Area Diabetes Summit March 13th, 2016 – San Francisco, CA

The Bay Area Diabetes Summit is a collaborative effort of medical providers, community organizations, and medical institutions throughout the Bay Area.

The Summit is open to all adults with T1D and their spouses, friends, and significant others, parents, caregivers, and family members of children with T1D. Children with T1D and their siblings can register for a Kids Camp offered by DYF counselors and staff.

April

ENDO 2016 (Endocrine Society) April 1 – 4, 2016 – Boston, MA

Remember that endocrinology is not just about diabetes; it’s about the entire endocrine system. While the annual conference does have diabetes sessions, it’s not the primary focus. There are a few pre-conference sessions focusing on diabetes and a few sessions during the conference.

Carb DM’s 4th Annual Mother-Daughter Weekend April 1-3, 2016 – Dublin, CA

This amazing event is for preteen/teen girls with T1D and their moms. This weekend focuses on T1D from a female perspective and addresses the female cycle from puberty to pregnancy and how it affects and is affected by T1D. Mother daughter communication, healthy body image, talking with peers and significant others about T1D, and more will be discussed.

Children with Diabetes Friends for Life Fall Church 2016 April 8 – 10, 2016 – Falls Church, VA

Three tracks will take you through technology, policy advocacy, Nightscout, and living with diabetes in this star studded conference near the nation’s capitol. Child care is available.

TCOYD (Taking Control of Your Diabetes) April 16, 2016 – Memphis, TN

TCOYD is a one-day program with tracks for both Type 1 and Type 2 individuals (and their friends and family, of course). Those who attend will have opportunities to learn about the latest tools, tips, techniques, and technology to help live healthier lives with diabetes. What I love about this program is that it was founded and is run by physicians who have intimate knowledge of diabetes; they have the disease! Many of the speakers also have Type 1 or Type 2 diabetes, so it’s not as if it’s a “do as I say and not as I do, because I don’t have a clue” program. If you have one coming to your area, you’re fortunate!

TCOYD (Taking Control of Your Diabetes) April 30, 2016 – Honolulu, HI

TCOYD is a one-day program with tracks for both Type 1 and Type 2 individuals (and their friends and family, of course). Those who attend will have opportunities to learn about the latest tools, tips, techniques, and technology to help live healthier lives with diabetes. What I love about this program is that it was founded and is run by physicians who have intimate knowledge of diabetes; they have the disease! Many of the speakers also have Type 1 or Type 2 diabetes, so it’s not as if it’s a “do as I say and not as I do, because I don’t have a clue” program. If you have one coming to your area, you’re fortunate!

GTC Diabetes Summit 2016 April 25-27, 2016 – Boston, MA

Got $2495? Then this conference is for you.

According to the website, that $2495 will get you research, partnership opportunities and network with academia, venture capital, government, small/medium size biotech, big pharma and healthcare organizations. The summit includes the Diabetes Drug Discovery and Development Conference, dealing with the clinical side of things. The Diabetes Partnering & Deal-Making Conference dives into opportunities for partnerships, funding, licensing, and the financial bits of it all.

May

TCOYD (Taking Control of Your Diabetes) May 21, 2016-  Washington, DC

TCOYD is a one-day program with tracks for both Type 1 and Type 2 individuals (and their friends and family, of course). Those who attend will have opportunities to learn about the latest tools, tips, techniques, and technology to help live healthier lives with diabetes. What I love about this program is that it was founded and is run by physicians who have intimate knowledge of diabetes; they have the disease! Many of the speakers also have Type 1 or Type 2 diabetes, so it’s not as if it’s a “do as I say and not as I do, because I don’t have a clue” program. If you have one coming to your area, you’re fortunate! (They’re missing the entire southeastern portion of the United States.)

31h Annual Clinical Conference on Diabetes (ADA) May 26 – 29, 2016,  Ponte Vedra, FL

While not patient-centric, attendees will hear “cutting-edge research translated into clinical practice”. The 30th Annual Clinical Conference is designed specifically for primary care and diabetes specialty physicians, doctor of osteopathy, podiatrists, pharmacists, physician assistants, nurse practitioners, nurses, psychologists and dietitians, certified diabetes educators and other health care professionals who care for patients with diabetes, at risk for diabetes, and who manage diabetes related complications.

AACE 25th Annual Scientific and Clinical Congress (American Association of Clinical Endocrinologists) May 25 – 29, 2016 Orlando, FL

Endocrinology encompasses more than just diabetes. There will be many sessions on diabetes and other endocrine issues at this conference for medical professionals.

June

Students With Diabetes National Conference June 3 – 5, 2016 – Safety Harbor, FL

A conference for young adults aged 18 – 30 from all over the country who want to learn about the latest in technology, research, and more from many amazing speakers.

 76th Scientific Sessions (ADA) June 10-14, 2016 – New Orleans, Louisiana

The “big” medical conference. While not specifically designed for the layperson with diabetes, many advocates do attend and sit in on sessions. Many study results are presented. We expect to see some major announcements this year.

Western Slipstream (Connected in Motion) June 17 – 19, 2016 – Canmore, Alberta, Canada

If you’re sporty and love The Great White North (to which the latter I can wholeheartedly attest), then go hang out with other Type 1s and do some athletic stuff. Connected In Motion is an amazing organization for adults with Type 1 diabetes.

TCOYD (Taking Control of Your Diabetes) June 18, 2016-  San Antonio, TX

TCOYD is a one-day program with tracks for both Type 1 and Type 2 individuals (and their friends and family, of course). Those who attend will have opportunities to learn about the latest tools, tips, techniques, and technology to help live healthier lives with diabetes. What I love about this program is that it was founded and is run by physicians who have intimate knowledge of diabetes; they have the disease! Many of the speakers also have Type 1 or Type 2 diabetes, so it’s not as if it’s a “do as I say and not as I do, because I don’t have a clue” program. If you have one coming to your area, you’re fortunate!

2016 ConnecT1D Retreat June 25 – 26, 2016 – Seattle/Bainbridge Island, WA

The 2016 ConnecT1D Retreat is a 1-2 Day retreat for adults, teens and young adults with Type 1 Diabetes (T1D). It’s a weekend to share, learn and laugh with others who face the demands- and oddities- of the daily grind that is T1D.

July

Friends for Life July 5 – 10, 2016 (Children With Diabetes) – Orlando, FL 

This is the de facto gold standard for any family with diabetes. It’s being held this year at the Orlando World Center Marriott.

Room rates are $169 + tax. This rate is available 3 days before and after the conference for those families who might want to extend their vacation. Self-parking is $18/day, with a 50% discount if you are in the room block.

Larger Suites may be reserved for hospitality events or entertaining, subject to availability. Suites are also available for larger families, again subject to availability. There are different types of suites and they have different prices; please contact the hotel directly for availability and pricing.

For housing reservations, call Marriott reservations directly at (888) 789-3090 or use Marriott’s Online Reservation System. If you are calling, be sure to say you are with the Children with Diabetes Friends for Life conference. The Children with Diabetes room block is available on a first-come, first-served basis. Please note that you are only in the CWD room block – and only have the perks of being in the room block – if you make reservations through these phone numbers or website.

2016 Practical Ways to Achieve Targets in Diabetes Care July 14 – 17, 2016 – Keystone, Colorado

While not a patient conference, worth taking a look at to see what’s being discussed. “This course is designed to help healthcare providers caring for patients with diabetes, including but not limited to, endocrinologists/diabetes specialists, internists, pediatricians, family physicians, physician assistants, medical residents, fellows, nurse practitioners, nurses, dietitians and certified diabetes educators.”

Hodia DTreat 2016 July 15 – 17, 2016 – Boise, ID

Hodia DTreat is a diabetes retreat for young adults with T1 and their support persons aged 18-30 years old! Over the weekend you will have the opportunity to form relationships with others who get it, and talk truth about the issues facing people your age with T1D.

August

TCOYD (Taking Control of Your Diabetes) August 27, 2016 Corning, CA

TCOYD is a one-day program with tracks for both Type 1 and Type 2 individuals (and their friends and family, of course). Those who attend will have opportunities to learn about the latest tools, tips, techniques, and technology to help live healthier lives with diabetes. What I love about this program is that it was founded and is run by physicians who have intimate knowledge of diabetes; they have the disease! Many of the speakers also have Type 1 or Type 2 diabetes, so it’s not as if it’s a “do as I say and not as I do, because I don’t have a clue” program. If you have one coming to your area, you’re fortunate!

AADE 16 (American Association  August 12 – 15, 2016 San Diego, CA

This is a conference for diabetes educators but patients are welcome to attend as well. The focus is on fostering better communication between patients and providers and helping educators to become integral parts of a patient’s care.

September

The Diabetes UnConference September 9 – 11, 2016 – Atlantic City, NJ

The first peer-to-peer idea exchange and support conference for all adults with Type 1 and Type 2 diabetes. Unlike other conferences geared to patients, this conference has no keynotes or research/expert presentations; just discussions facilitated by those with diabetes about topics that may be difficult to have with people who don’t have diabetes!

Summer Slipstream (Connected in Motion) September 16 – 18, 2016 – Ontario, Canada

If you’re sporty and love The Great White North (to which the latter I can wholeheartedly attest), then go hang out with other Type 1s and do some athletic stuff. Connected In Motion is an amazing organization for adults with Type 1 diabetes.

Friends for Life Anaheim 2016 September 16 – 18, 2016 – Anaheim, California 

Registration has not opened yet. This will be updated when the registration link becomes available.

52nd EASD Annual Meeting  (European Association for the Study of Diabetes) – Munich, Germany

This is the European “big” medical conference, much like ADA’s Scientific Sessions.

October

Slipstream in the US (Connected in Motion) October, 2016 – TBA

Connected In Motion is an amazing organization for adults with Type 1 diabetes and they’ll be coming to the US to do something athletic. At this time, no further information regarding dates, place, or cost has been released, but by bookmarking this page, you can come back and check!

TCOYD (Taking Control of Your Diabetes) October 1, 2016 – San Diego, CA

TCOYD is a one-day program with tracks for both Type 1 and Type 2 individuals (and their friends and family, of course). Those who attend will have opportunities to learn about the latest tools, tips, techniques, and technology to help live healthier lives with diabetes. What I love about this program is that it was founded and is run by physicians who have intimate knowledge of diabetes; they have the disease! Many of the speakers also have Type 1 or Type 2 diabetes, so it’s not as if it’s a “do as I say and not as I do, because I don’t have a clue” program. If you have one coming to your area, you’re fortunate!

Canadian Diabetes Association CDA/CSEM Professional Conference October 26 – 29, 2016 Ottawa, Ontario, Canada

The “big” medical conference in Canada. While not specifically designed for the layperson with diabetes, many advocates do attend and sit in on sessions.

November

TCOYD (Taking Control of Your Diabetes) November 19, 2016 –  Orlando, FL

TCOYD is a one-day program with tracks for both Type 1 and Type 2 individuals (and their friends and family, of course). Those who attend will have opportunities to learn about the latest tools, tips, techniques, and technology to help live healthier lives with diabetes. What I love about this program is that it was founded and is run by physicians who have intimate knowledge of diabetes; they have the disease! Many of the speakers also have Type 1 or Type 2 diabetes, so it’s not as if it’s a “do as I say and not as I do, because I don’t have a clue” program. If you have one coming to your area, you’re fortunate!


 

Want to help your fellow people impacted by diabetes by sharing this page on Twitter?

Simply click the birdie and let it automatically tweet this link for you.

Because you rock. 

Tweet: Your 2016 #Diabetes Conference Calendar is here: http://ctt.ec/B6b7I+ thanks to @theperfectdblog - bookmark it! #doc


 

PLEASE NOTE:

I did not include “invite only” conferences.

As always, there are bound to be more opportunities to meet other people with diabetes, learn about the disease, and advocate. These are just a few. As I hear of more, I’ll post them here. And if you’re interested in getting your national/regional event on the list, please contact me at theperfectd [at] gmail.com and let’s talk.

#CollegeDiabetesWeek

unnamed-8I rode to McGill University on a wooly mammoth with my abacas strapped to my back.

At least, it feels like I did when I talk with current college students. (I didn’t have a cell phone. FaceBook didn’t exist. You wanted to use the Internet? Go to the computer lab.) Yet, despite the years that will separate our convocation dates, we have the same university experiences: not enough sleep, too much to do, new challenges to face, and navigating towards an uncertain future.

For some of us, we add diabetes to the mix to make it fun. (I wish there was a sarcastic font. Then again, most of this blog would use that font. Never mind.)

I didn’t hide my diabetes, but I certainly didn’t raise awareness, advocate for myself, or seek out other T1s to get support at McGill. I didn’t know a single person with diabetes the entire four years of my undergraduate degree. When I disclosed this to the team at the College Diabetes Network  (CDN) last week, my heart ached a little.

Christina Roth, founder and CEO of the College Diabetes Network explains why CDN exists: “In 2009, during my junior year at the University of Massachusetts, Amherst, I started a group on campus so that I could meet other students juggling diabetes and college life. That group changed my life and the many barriers I experienced in creating the group changed the path of my life.”

I needed that peer support back then, just as much as I do now. I’m thrilled that this organization exists and is creating programs so that support is always available for students (and parents and friends, too!).

College Diabetes Week

logo_0This week (November 9 – 13), I’m going back to college. Not on my wooly mammoth, but on the Internet, and I hope you join me on social media.

As part of National Diabetes Awareness Month, CDN is hosting the 2nd annual College Diabetes Week. With over 30 campuses participating in the week’s events, we can join in on the fun (well, at least online)!

What’s this about? Here is a blog by one of the CDN students about College Diabetes Week.

How can you participate?

Use the #CollegeDiabetesWeek hashtag (and you can also use #college and #diabetes too!) to share your thoughts about what it’s like (or was like) as a college student with diabetes. Each day is a different theme:

Monday – Education

Tuesday- Fundraising

Wednesday- Awareness

Thursday Advocating

Friday- Celebrating!

Friends? Yes. Did they know I had diabetes? Only two of them. The others thought I really liked LifeSavers.
Friends? Yes. Did they know I had diabetes? Only two of them. The others thought I really liked LifeSavers.

If you could go back to university, what would you do differently to help educate, fundraise, raise awareness, and advocate? How would you celebrate life with diabetes as a student? What do you want current students to know?

Share your thoughts, views, and ideas on Twitter, Facebook, and Instagram and help CDN make this an amazing #CollegeDiabetesWeek!