Two Minute Diabetes Advocacy

708615_95129272If you have two minutes, you can advocate for diabetes.

I know what you’re thinking.

What can I do in two minutes?

More than you probably think possible.

There are those who make it their life’s mission to advocate for diabetes. I am so very grateful that they speak in front of the FDA panels and talk with decision makers in D.C., because I can’t right now.

You may not be able to devote a lot of time, but you still want to make a difference. Me, too.

With that in mind, I am dedicating a portion of The Perfect D blog to “Two Minute Diabetes Advocacy”. This is the first portion – an amuse-bouche (a little taste) to whet your appetite.

A stumbling block I see in advocating for diabetes is the amount of reading that needs to be done to understand the issue, whether it be a docket or a brief or a bill being introduced. There can be a lot of gobbledygook and if you’re like me, you want to cut to the chase, get to the point quickly, and then act on it.

Two Minute Diabetes Advocacy

 

Here’s the deal I present to you…

  • I’ll read the gooblyedygook,
  • summarize the key points for you (and yes, I’ll add my own comments. It’s my blog.),
  • and then give you the steps you can take in just two minutes to advocate for diabetes.

I’m association agnostic when it comes to diabetes advocacy. If more than one organization offers an easy way to express your opinion on a topic, then I’ll give it for you to decide. You just won’t have to go hunting for a way to advocate. I’ll bring the options for you.

Some may take just a little longer than two minutes, but you can skip an extra visit to Facebook occasionally, can’t you? Perhaps one less Buzzfeed quiz?

I’ve seen what the power of our community can do with just a little time from each of us. There are so many opportunities to advocate for ourselves, our loved ones, and for the future of the United States.

1 in 3 American adults will be diagnosed with diabetes by 2050 if we don’t do something.

Your end of the deal is to take those two minutes and do just one of the options I give you. Of course, it’s on the honor system, but I’m hoping that we will make a difference. So little time can do so much good. Let’s start with this…

National Diabetes Clinical Care Commission Act

The Highlights from the Bill (House 1074/Senate 539)

“To amend the Public Health Service Act to foster more effective implementation and coordination of clinical care for people with pre-diabetes and diabetes.”

“There are 35 Federal department, agencies , and offices involved in the implementation of Federal diabetes activities.”

What The Bill Will Do

What the bill will do: Create a National Diabetes Clinical Care Commission to make recommendations regarding better coordinations and leveraging of programs that will support clinical care (between health providers and people with diabetes and pre-diabetes).

This Commission will include voting members from heads of Federal agencies/departments that impact clinical care AND a select few outside of the government: clinical endocrinologists, physicians who impact diabetes care, primary care physicians, Certified Diabetes Educators, patient advocates, national experts.

The Commission will meet up to four times per year to:

  • evaluate the existing utilization of diabetes screening benefits,
  • address issues with data collection or the benefits,
  • identify current activities and gaps to help clinicians provide integrative care for people with diabetes and pre-diabetes,
  • make recommendations about coordination, tools, and programs needed,
  • recommend how an outcomes-based registry can be created and used,
  • evaluate and expand education and awareness to physicians and other health professionals regarding clinical practices for the prevention of diabetes and the precursor conditions of diabetes,
  • review and recommend outreach and dissemination of educational resources for health professionals and the public.

After meeting for the first time, the Commission will have 90 days to come up with a plan for carrying out the activities of the commission, including a budget, resources needed, and who needs to be involved to make it happen. In three years, if not sooner, the Commission will submit a report to Congress and the Secretary of HHS of the findings and recommendations.

Why You Should Care

1) We do not have a Commission for diabetes. One in three Medicare dollars goes to treating diabetes and its complications. Duh. We need one.

2) 35 Federal agencies. Have you tried to get 35 people to communicate on something, never mind 35 agencies? This Commission will ensure that no one is reinventing the wheel or wasting tax dollars duplicating work.

3) Educational materials. How many times do you cringe when a clinical medical professional makes a comment about diabetes that is just not correct. The Commission will help heighten diabetes awareness on a grand scale.

4) Patient advocate on the Commission. A voting advocate. I’ve met some existing FDA advocates and they are super intelligent. We need a patient at every table. This Commission will have one.

 How You Can Advocate for Diabetes In Two Minutes Or Less Right Now

The American Association of Clinical Endocrinologists have done all the work for you. One click. 

Go here and click the Take Action button to send an email to your representative and two senators for your state. The email body is from an endo’s viewpoint, but you can quickly change it to tell them why your elected representatives should co-sponsor or vote yes for this bill.

You can copy and paste this if YOU have diabetes:

I have diabetes. We need a coordinated action committee for the epidemic that is taking one of every three Medicare dollars for treatment. We need better education for clinical professional and the general public to prevent complications and help those who live with this disease. Please vote yes on this bill.

You can copy  and paste this if SOMEONE YOU LOVE has diabetes:

Someone I love has diabetes. We need a coordinated action committee for the epidemic that is taking one of every three Medicare dollars for treatment. We need better education for clinical professional and the general public to prevent complications and help those who live with this disease. Please vote yes on this bill.

(The AMA, AADE, JDRF, ADA and others all support this bill. I couldn’t find an organization who doesn’t support it!)

That’s all you have to do today.

One click and done.

But every click makes a difference.

Every one.

If you’re interested in doing a little more than one click, I urge you to complete the quick survey over at Diabetes Advocates and help change the world of diabetes one advocate at a time.

And when I say advocate, I mean you.

 

0 comments

  1. Heather Gabel

    You make everything so tangible and easy to understand. Thank you for guiding us toward feeling able to effect change at a policy level. Done. 🙂 Love you <3

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