This week, I’m participating in the 4th Annual Diabetes Blog Week. A whole bunch of great people are writing about the same topic each day, so you get a lot of different views. To see what everyone else is saying, click on the link at the end of this post.
Here’s today’s topic:
Often our health care team only sees us for about 15 minutes several times a year, and they might not have a sense of what our lives are really like. Today, let’s pretend our medical team is reading our blogs. What do you wish they could see about your and/or your loved one’s daily life with diabetes? On the other hand, what do you hope they don’t see?
You look at my chart. Review my pump settings. Ask how I’ve been feeling. Write a few prescriptions. Listen to my heartbeat. Thump a tuning fork and let it vibrate against my ankle. Shake my hand good-bye.
We’ve shared about 25 of the 525,949 minutes in a year. Let me tell you about the minutes you don’t see.
Most of them aren’t spent obsessing over my diabetes. I’ve got other obsessions: my daughter, my husband, our future, when the next Sherlock series with Benedict Cumberbatch will finally be filmed. I have places to go and people to
harass spend quality time with and diabetes can get in the way. And lately, I’m frustrated with that.
I’m not the perfect diabetic. (Yes, I know. The blog title? Me being facetious. Tongue so firmly implanted in cheek that I’ve bored a hole through it.) But I strive to be better than I was yesterday. I test, I contemplate, I think before I choose what I’ll eat. Numbers have become the bellweather of my days and those numbers have a firm grip on me and my sanity.
I spend 525,949 minutes each year with my diabetes. There is no break. When I walk out of your office, you go on to the next patient. You probably do not think of me until you are handed my chart to sign off on my lab report (which is another set of numbers telling you very little about me) or when you see my smiling face in your exam room.
I hate blood. I hate needles. Hated them before my diagnosis, but am now stuck (yes, pun intended) with both in large quantities. Of the 525,949 minutes, at least 4,000 of them are spent sticking myself. Some people get off on pain; I don’t.
Then there are the minutes on the phone fighting with insurance (And I do mean fighting. I have not ever called them to say: “Great job and thanks for covering everything I need!”) or talking with pharmacists or calculating how much money it’s going to cost this year to stay…alive. But it gets done so I can enjoy the rest of the minutes I do have.
There are the minutes I spend worrying about some of the past minutes in my life when I didn’t take care of myself and how it will impact the future minutes. And then there are the lost minutes when my blood sugar is low or high and my brain is fuzzy. I miss those minutes the most, because I can never get them back.
I want to enjoy more than these 525,949 minutes this year. I want many more minutes. I need your help.
Want to see other views: The 2013 Diabetes Blog Week participant list…